Have you been offered any routine blo... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Have you been offered any routine blood tests since diagnosis? If so how often do you have them?

Mdaisy profile imageMdaisy265 Voters

Please select one:

18 Replies
staceymarie76 profile image
staceymarie76

I voted "other" as I am only given blood tests when I complain about another symptom really and they want to rule out something else before saying "it's fibro"

Glenys profile image
Glenys in reply tostaceymarie76

Same here. I have to ask them if I am due a test yet! I even had to ask the GP for a VitD3 test. I was in the red, and asked if I would have had a test like this before, and the reply came "we only ask you to go for a test if we think you need it". I asked THEM!

lunarflyhome profile image
lunarflyhome

voted other as I have always had for 15 years,blood tests on flare ups or change in pain,usually too rule out other symptoms,thats the problem with Fibromyalgia its multi faceted.

But the Danger is it can mask another complaint,thats why we are continually having blood test's.

The main reason for this is GP's are confused on how to handle Fibromyalgia?

Tomcat98 profile image
Tomcat98 in reply tolunarflyhome

Only one of my GPs sees Fibro patients, and discusses treatment. The others don't seem to want to recognise it.

Ginsing profile image
Ginsing

strangely since having had them all the time about six months ago they stopped and have had none since!

Over five years I had every conceivable test no nothing denada

lunarflyhome profile image
lunarflyhome in reply toGinsing

I have probably had Fibromyalgia since 1992 serious RTA,I have enough information too write a book on the ups and downs of Fibromyalgia,Taking the Kings college blood tests to try and find a cure,we should all support this?

Like you I have had every test under the sun as well,for me staying positive and engaging with the community is my cure for know! I am Chairman of a new venture called "Hardy's View Gardening Society" Gardens to rent plus nature walk and wild garden a beautiful place to be in Dorset.

helping people with autism,accidents,heart problems,plus very keen gardeners,all backed by the NSALG.

over four acres of Land.

These polls our very useful and its good for us too see we are the same as others,its how we deal with this very debilitating complaint mentally that counts!

hog2203 profile image
hog2203

I voted other, I was diagnosed over 9 years ago and the only blood tests I have had since has been 1 to find out if I was anemic.

Anniexx profile image
Anniexx

I voted none since diagnoses, Annax

ladytelita profile image
ladytelita

I had to vote other as I have had quite a number of blood tests this year but cannot imagine that happening on a monthly basis. The GP does suggest he sees his Fibro patients once a month but only do tests when the patient is not getting better or feeling worse....or if new symptoms come up I guess.

It's really too early in my diagnosis to give a true image for this poll. Ask me again in a few years!

P.

jillylin profile image
jillylin

No nothing for me. It seems a case of the Pain management team diagnosed Fibromyalgia and that was more or less the end of it beyond doing a FMS pain management course. It's like you have this, do this or that and bye bye.

Hugs

Jillxx

I've had blood tests for other reasons but none related to fibro. What tests would they be?

lcm27 profile image
lcm27

I do get blood tests periodically if my gp or consultant thinks it necessary, but as I am now on Methotrexate I now have them monthly. Its also a good indication of any flare ups. But I would like to have the 10 different ones shown on my card explained properly to me and not have to trawl the net for info.

lalumsden profile image
lalumsden

I only have blood tests done if I see my GP with a new symptom.

carmad profile image
carmad

l have never had the word fibro mentioned since they told me at Derriford Hospital 15 years ago,BUT with the neck break op and spondilitus op,lm riddle with arthritis so probably the combination of my other problems outweighs the fibro,sometimes l havent a clue what is hurting me,spondilitus,arthritus.fibro,so l do have blood tests and got to be thankful l suppose and a lot of xrays MRI and CT scans,but the pain could be any or all of them.x

tracypom profile image
tracypom

I have blood tests every 3 months so the doc can keep a check on me. But I just wish every time I go

With a new pain, or loss of memory etc, they mess with my tablets and mess me up !

TheAuthor profile image
TheAuthor

Hi all

Just been informed about this poll and again, I am extremely surprised! Before my diagnosis I underwent multiple blood tests, visits to a chiropractor and saw my GP three times. Since my diagnosis I have had the full range of blood tests including coelliac and crohn's disease. As a result of a fall I have also had MRI and mulitple x-rays this week (get results on Wednesday). My local hospital (don't know if am allowed to name them?) had a fibromyalgia open day recently and were giving out leaflets on all the symptoms etc they had a big feature especially on IBS with the syndrome.

TheAuthor profile image
TheAuthor

Hi everyone

The Derby Royal Hospital has held a Fibromyalgia awareness and information day. They had leaflets about everything from pain management, IBS, diet and groups etc. It looks like it might be a regular thing as they host a group at their other hospital in Derby. My son-in-law works there so will try and get any information that I can and relay openly to all.

All my hopes and dreams

Ken (the author) xx

tracypom profile image
tracypom

Every 3 months, more if I have a flare up

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