just an introduction : My name is Karen... - Living with Fatty...

Living with Fatty Liver and NASH

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just an introduction

Emkayw61 profile image
10 Replies

My name is Karen.

I am a 61 year old female.

I have been recently diagnosed with Cirrhosis.

it is NAFLD related.

According to my doctor, I have around 30% liver function. It is ironic because I have CHF and my heart has about 30% function.

anything else you want to know, just ask. For the most part I am an open book.

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Emkayw61 profile image
Emkayw61
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10 Replies
ThyroidDeb profile image
ThyroidDeb

What test did you have to determine you had cirrhosis and what stage was determined? What did your doctor suggest you do from this point forward?

Emkayw61 profile image
Emkayw61 in reply toThyroidDeb

I had a transjugular liver biopsy. Stage 3. Doctor said they’ll see me in May. I have been encouraged to message through their portal any questions that come up.

CirroShis profile image
CirroShis

Hi, i had AFIB, a mini stroke, glaucoma, had heart shocked 3x to get it going again, in and out of hospital for heart over 5 years; no issues with mini stroke/ glaucoma ongoing being looked at. Recently diagnosed with NAFLD/Cirrhosis, told inherited - age 74. Firstly because of severe side effects on every prescribed drug including blood thinners - went off all! Went off all eye drops for glaucoma - result currently no heart disease at last check up this summer - dr. said he didn't have to see me anymore. Glaucoma - stable, hasn't progressed. Aso used natural remedies. Recently diagnosed - 3 mos. ago with N/C, just had 2nd ultra sound, following vegan diet as before...which i'd stopped and think contributed to diagnosis - took back sugar; fried foods; luncheon meats - meat; - saw dr. yesterday...N/C (4th stage..which puts you into the cirrhosis category) no change; said i should live minimum 12 years - doesn't want to see me again until August. Feeling much better and back on track. She also said she see's 50% more patients now with NAFLD/C and feels comfortable its no longer a death sentence; can be stopped with food and exercise. Not advocating anyone take this approach it worked for me and for my husband whose Type 2 diabetes 'left'...he took no herbal remedies and his prostate cancer has remained 'gone' for over 14 years now which he gets checked yearly.

D

Canada

Bluegirl52 profile image
Bluegirl52

saw your introduction and your CHF caught my eye. I have cirrhosis related to my heart. I had right sided heart failure from massive severe tricuspid valve regurgitation. I also have left sided heart failure. Anyway, we thought the cirrhosis might be related to fatty liver but after testing done at Duke University, it was determined to have been caused by my right sided heart failure. It’s call Congestive Hepatopathy or Cardiac cirrhosis. I don’t anything about your heart failure but thought you might like to be aware that the heart can affect the liver.

Emkayw61 profile image
Emkayw61 in reply toBluegirl52

Left sided heart failure, is it lbbb?

Emkayw61 profile image
Emkayw61 in reply toBluegirl52

I am not sure, but I am investigating now to see if it could be that.

Bluegirl52 profile image
Bluegirl52

I also had a tricuspid valve replacement almost 2 years ago. It has helped keep my cirrhosis stable and compensated. I follow a fatty liver diet to try and keep my liver in the best shape possible.

sophiaS1980 profile image
sophiaS1980 in reply toBluegirl52

Where you on medication to help your Valve close properly, doc's usually presc. atenolol to slow the heart down to help valve close?

Bluegirl52 profile image
Bluegirl52 in reply tosophiaS1980

I have been on medication for years. I’m 71 and my first open heart surgery was at age 22 to repair my mitral valve. Then it was replaced seven years later. Had a pacemaker and defibrillator implanted 15 years ago and found out that the wires from those were keeping the tricuspid valve from closing properly. All the extra fluid was rushing back into the liver and slowly destroying it.

Emkayw61 profile image
Emkayw61 in reply toBluegirl52

So sorry to read that. Best wishes to you.

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