Hi, I have just had my 2nd adopted child diagnosed with fasd and have been told in writing that it has no direct impact on her schooling and

[Love2nag]

Education. What can I do ? They see it as a health issue and treat it like autism with a treat as we go education policy .

[fasdnorthwest]

I dont now where ypu are but the trust have suppport group around the country look on fasdtrust.co.uk for full details

[songar]

I suppose you have to have her needs assessed and find out what her needs are then ...

You can self refer for Sen assessmet check local council web site .

I have no idea how they can state it has no impact on schooling , how can they possible know that !?

Every child is different , but it will most certainly have some impact . Challenge them , and then work with school to identify her needs .. they are right there isn't one answer that fits all so a treat as you go is useful , but to start her needs have to be identified , surely .

Hope I have helped ??

Xbest of luck xx

[LearningFast]

Hi there, I am not an expert as we are continually learning, but, the SEN, then leading to a "statement", I think is what you need, and we have done. Once you have a "statement" that gives the school X Hours funding a week, for one to one educational help, deemed appropriate, by the Statement.

So you may get 5 hours a week, 10, up to 25, the maximum.

We pushed and pushed, and got to a Statement in about 9 months. So our daughter now has 15 hours at nursery (she is still only 2, nearly 3) and will get 25 hours at school when she starts.

Having a diagnosis, say from a pediatrician is fundamental to getting a statement, but is only part of the jigsaw for a Statement.

I expect what is happening with the school, is they are not recognizing it, if you have not got a Statement. I think, say think, Autism etc is the same. Diagnosis is one thing, the funding, from the Statement, is the key.

Hope that helps in some way.

[petuniaave]

wow learningfast you must have a good LEA to have a statement for your child at such a young age, which is quite right by the way. i have been fighting for a statutory assessment for years and keep getting refused. my daughter is 5 and has been excluded and starts at a pupil referral unit next week. i am absolutely furious as it should never have come to this. i have been saying since she was 2 1/2 that she would need specialist education, no one takes a bit of notice to me. in answer to the original question i cannot see how the FAS would NOT affect her schooling. what a strange thing for them to say.

[Hidden]

If schools has any problem understanding FASD and education suggest all refer schools too SSA Trust ( Special Schools Academy Trust Webb site ) All the latest UK Information for teachers regards teaching of pupils is available , was part of a recent 3 year project developed by The department of education. Parents of children with FASD and their schools. Is also now available in a training form for SEN teachers. Developed by Professor Barry Carpenter SSA Academy Trust. Think if you Google FAS-Ed report UK you may be able too see draft copy

[summerflowers in reply to Hidden]

Actually the FAS-eD report was written by Carolyn Blackburn and can be found at nofas-uk.org. FASD was only a small part of the complex needs work.

[Hidden in reply to summerflowers]

Report and FAS-eD Research was infact commissioned by Department of Education and Teacher Training Development Agency and Training modules are available for teachers.

Was led by professor Barry Carpenter included Several School over 1000 research assistant's from university's across the UK and was very comprehensive. Actual training module includes video's from parents including Ali McCormick a Consultant social worker and mum of 3 children will FAS. Was involved with initial process with NOFAS and www FASaware.co.uk who commissioned a initial film for Teachers TV inviting schools too take part. was very much a comprehensive multi organisational project.

[summerflowers in reply to Hidden]

Sorry but the FAS-eD project report was commissioned by the TDA and conducted by NOFAS with Carolyn Blackburn as the researcher. Barry Carpenter was indeed the Director. The complex needs project was organised by SSAT and again directed by Barry Carpenter. They are two separate projects. The FAS-eD project report, literature review and project materials can be found on the NOFAS website nofas-uk.org/ and the complex needs materials can be found on the complex needs website complexld.ssatrust.org.uk/ . The complex needs project did not involve research assistants from Universities, they were recruited by SSAT from schools. Alis video is part of the online materials from the Tresed project which can be found on completely different website complexneeds.org.uk/. These projects all involved Barry and they all include FASD as an element. Only 9 schools were involved in the FAS-eD project and one of them was a school where Alis daughter attended. The complex needs project did involve over 100 (but certainly nowhere near 1,000! as you will see if you read the project report) schools but only 4 research assistants. A small number of the students involved has FASD. It was however, a comprehensive piece of complex needs work that involved FASD as a part of it, whereas the FAS-eD project was entirely FASD. The FAS-eD project lasted for 18 months, (May 2009 - 0ctober 2010) the CLDD project lasted from Sept 2009 to March 2011 and the Tresed project started in March 2011 and was completed I think by Jan/Feb 2012, though it may have over-run.

[Hidden in reply to summerflowers]

CORRECT as stated was AS A RESULT OF A LOT OF INPUT AND MULTI ORGANISATIONAL Co - Operation. Many who were around before NOFAS and FASD Trust included, mostly Adoptive parents who engaged with the professionals and did many many Workshops and conferencing too bring the professionals on board Sunfield research being one of which Barry Carpenter at the time was a Trustee member. and engagement with the TDA.,

NOT too distract from all the co-operation and valuable work which has been achieved , which was and is the ultimate aim of awareness and sharing of knowledge too the greater advancement too helping children with FAS and FASD. Work will still be on-going for many year's too come.

[Joygirl]

The FASD Trust now runs the uk education forum on fasd and they provide training for teachers. Advice to parents. And can do personal 1;1 observations in class with then recommendations specific to child. Email admin@ fasdtrust.co.uk for dates of training and help

[Hidden]

Think school is not up to date further too my last post suggest you make a tactical point FASD SEN Education is now available too all schools in the UK so no excuses any more. This has been as a result of ALL support groups and Parents pushing the point for years. Information for school regards teaching FAS and FASD children.

See complexneeds.org.uk and comlexld.ssatrust.org.uk just click project information then click project resources all is approved by The Department of Education. Think this will answer your school's opinion.

you can download the sheets too.

[Hidden]

Sorry forgot too say your children will be entitled too the New Pupil Premium Plus at £1900 a year for Adopted children, SGO children and Kinship care. This can be used by the school for extra support, buy in OT., Teacher training as by fasdtrust, & Department of education, Inclusion i.e. special tuition lesson's ( Music , dance .sports training etc.) short breaks holidays, teaching equipment the list is endless . This is for your children it will be monitored by OFSTED so will be accounted on inspection as how it is used for the INDIVIDUAL. Where the individual does not require support then can be used for benefit of whole school SEN needs.

[Love2nag]

Thanks I did not realise it was that much , and I have just paid for OT assessment!!!

However school keep coming back to no diagnosis therefore no need for fasd assessment.I am sure that we will have to pay for fae diagnosis before we get any help.

Thanks for good support and lots of info

[hholland]

My two adopted boys have recently been seen by ed psychologist for tests and this was referred by my social worker. They are waiting for paed app now for full diagnosis. It is likely they both have FASD. Contact your local adoption support. We're in West Yorks and they have been brilliant. Even been into school with me.