Hello. Like you I was really scared when I was diagnosed with BP. My doctor wasn't very helpful and to be honest there isn't really much you can do for the first month. Best not to start pulling your face around too much but you could try steaming and warm wheat pads if you have any pain around your ear. I also had acupuncture which does help some people. I think the biggest help is to try and stay positive and to look after yourself. Take some time off work, eat healthy food and take naps. If you have trouble with your eye make sure you tape at night and use good quality eye drops. You will get better, everyone does usually, it's just a shock at first. I'm now 5 months on and 72% better, I'm having physio but the videos on this site are just as good as physio so wait a month and then start the massage and stretching exercises. Hope you feel better soon, keep warm and good luck!
I also had terrible pain with my ear, I took codeine which helped a little but I also bought an electric heating pad which really helped. I know how bad you must be feeling and I'm not a very patient person but that's all you can do. I also kept a diary and took pics on my phone once I started to improve.
When you get the pain behind your ear if you have a heating pad place a then towel over it and lay your head on it the heat helps a lot believe me.
Like I had expressed when I first found this site I've had BP 13 times. The first time was 1969.
On each side of my face very traumatic but I made it through them left paralysis that is noticeable that I'm fine with it no choice. That this is what I found during the years that helps when those pains feel like you're being stabbed with a ice pick behind your ear is the heating pad and please don't forget you're syllables to help your muscles a A,E,I,O,U AND WHEN YOU DO THESE EXERCISES MAKE SURE YOU PUT A LOT EXPRESSION WHEN YOU ARE SAYING THE SYLLABLES SO IT CAN STRETCH YOUR MUSCLES TO UNFREEZE THEM AND YOUR NERVES. I HOPE THINGS GET BETTER FOR YOU AND I WILL BE PRAYING FOR ALL OF YOU THAT HAS BEEN STRUCK WITH THIS UNFORTUNATE ILLNESS THERE'S NO OTHER WAY TO LIST THIS. MY HEART GOES OUT TO ALL YOU , I'M 59 AND STILL GOING
I had palsy after a major brain op. My face on the Left hand side was completely slumped, and I could not fully close one eye or cry.
I did lots of things to stimulate my facial nerves & muscles. Some are self invented like gently slapping my face in traffic jams or trying to blink while lying down in bed.
In addition I went to a Chinese medical practitioner [A Yorkshireman but trained in China] he used acupuncture and moxibustion. I had tried the electronic pads to stimulate the muscles but preferred the acupuncture. I felt that the acupuncture was so exact, it really felt he was hitting the bulls eye each time. [If he was off target he usually sensed it and asked me then tried again] I never felt a thing - it felt like he was tapping my face. [ I never looked]
For my eye I had two kinds of drops - a gooey one at night and a runny one for the day in cold or windy weather. I used micropore to tape it shut at night. Do not worry when you take it off in the morning it does not peel off your eyelashes!
End result I feel a lot better in myself and made a good recovery. [in my mind]
The important point was I stayed positive. I got very little follow up about the palsy, so inventing my procedures gave me a sense of actively doing something to get better. I never sat back and waited for it to happen. My two daughters, wife and dog gave me no choice.
Whatever you do, believe it is going to improve. If you do not have hope then it is hopeless. Everyone is different, you just need to keep trying till you find what helps you, never give up. [I still slap my face in traffic jams]
My daughters laughed because the passengers in an adjoining bus were staring at my face slapping. I did not describe moxibustion then you really would laugh! It sounds so bizarre to western ears, but I really enjoyed it and thought it worked...........for me.
I was very tired after the op.
My Chinese medical practitioner had asked me a lot of "odd" questions that seemed totally unrelated to my facial palsy. That is because they take a holistic view - the whole person. That is why he asked me to take off a sock............ Phew I had cleaned my feet! I was not expecting this - it is my face I am in about. He needled between my toes and heh presto I suddenly had more energy, I slunk to the clinic, and while I did not sprint out I felt more full of energy than any time since the op. Like a light switch - but it might not be you or appropriate for you. Everyone is different
Have you started on your road to recovery? It starts in you and the sooner you start, the sooner you will move on. No choice on the route to take. Norman
Hi Amy, I’m in Day 19 now. I can nearly do a full smile, I can raise my eyebrows and my face is looking more normal. My eye still doesn’t close or blink properly but I’m getting there. It has however brought my anxiety back so I’m now battling with that. Onwards and upwards. How are you, any changes or improvements? Xx
Hi Amy, you seem to have had a really bad time of it. I think your palsy is worse than mine tbh. I still don’t feel right and today I’m back at work. I think another 2 weeks before I’m closer to normal. I absolutely HATE Bells Palsy! Lolx
Hope your day back at work is going alright. I'm still working which some days is easier than others. I so agree with hating bells palsy!
I'm unsure if mine is worse it might just be I'm not resting as much etc. But I'll get there as will you. I'm reading a lot about how important it is to rest so I'm thinking i may look at being signed off work to recover. X
I was diagnosed in early December and am maybe 90% better. Not having ever had this condition before, I really don’t have anything to compare against. BUT, I started acupuncture right away. I REALLY feel as though this helped.
Also-relax, as much as you possibly can.
My brother gave me some CBD gummies, because I just couldn’t shake the scared, anxiety. They really helped me chill out. And rest.
As others have said, rest and relaxation are the key. Your nerves need time to repair and it really zaps your energy levels. Stress only hampers recovery times. I found videos of facial massages you can do and did these several times a day using nice relaxing oils and warm water. This helps manage the pain too. Other than that it's just patience unfortunately. I kept a diary of the changes every day and it really helped to track the improvement. Hope you recover soon x
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