Hi Ive newly been diagnosed with epilepsy. The diagnosis totally threw me. The EEG indicates I have partial epilepsy.
I had two brain operations last year and the partial epilepsy is in the area of damaged brain.
Initially the cons neurologist said she suspected simple partial seizures (before I was tested). At my diagnosis appt I gave her the suspected seizure diary where I had 876 seizures in July alone on top of the hallucinogenic seizures and she said I had complex partial seizures.
I dont get to see her again until Dec and i have lots of questions - like why do you think I have increased to Complex partial epilepsy.
I dont have/havent been told I can access an epilepsy nurse specialist. Is there anyone who's experienced in epilepsy tell me why the suspected seizures have jumped from simplle partial epilepsy to complex partial epilepsy?
I've told some members of my family and one close friend.
I dont want to tell anyone else as I was poorly educated about epilepsy and im well aware the risk of knowing my friends and healthcare colleagues are just as uneducated and ignorant as me.
My senior manager at work discriminated against me on 3 seperate occasions when the occupational health consultant told her i had suspected seizures.
Thank you in advance