Temporal libe: Hi Has anyone had... - Epilepsy Research...

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Temporal libe

Tenerife1234 profile image
5 Replies

Hi

Has anyone had surgery for mesial sclerosis on the temporal lobe?

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Tenerife1234 profile image
Tenerife1234
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Whyme89 profile image
Whyme89

Hi, I had surgery for temporal lobe epilepsy in 1989. This was successful for 9 years, but then it returned. So I got back on medication which worked, but then in November 2017, my seizures returned AGAIN! So far, my last seizure now was back in August 2019.

Is surgery something you are definitely having done, or are you just considering it at this stage?

Tenerife1234 profile image
Tenerife1234 in reply to Whyme89

Hi,

Thanks for replying. My doctor has told me that I have tried every med on the market and will not improve unless I have surgery. I have mild seizures every 2 weeks.

I am obviously worried about surgery and the side effects and need to decide if it is worth doing or actually necessary

SASQUATCHBOBO profile image
SASQUATCHBOBO in reply to Tenerife1234

What are the drs offering for surgeries?

Tenerife1234 profile image
Tenerife1234 in reply to SASQUATCHBOBO

I am not sure what the temporal lobectomy.

Whyme89 profile image
Whyme89 in reply to Tenerife1234

My procedure was called Amgydalahippocampectomy.