My 16 year old son has been diagnosed with epilepsy since he was 14. He was living with his dad in Africa and was involved in a car accident in April-12, but did not receive immediate medical attention. 8 months after the accident he started having epileptic seizures. The doctors there associated the car accident with the epilepsy and prescribed Phenobarbitone. I brought him over to the UK in Dec-13. He had an EGG scan which found some minor irregularities in his sleep. The MRI scan came out normal. The doctor took him off the Phenobarbitone and prescribed Epilim. He kept having seizures once a month and the doctor eventually increased the dose to 2g daily. He also had seizures every time he had a cold. The doctor believed that if the dosed is increased, if he gets any cold it will not trigger any seizures. That was in August 2014.
In Nov-14, we brought some concerns to the hospital doctor about his memory loss (he tends to forget things easily), his teachers are complaining about his lack of concentration in the class (though he’s performance was of no concern at the time), he’s clumsy and seems absent when you are talking to him. The doctor informed us that she will refer him to a neuropsychologist.
In terms of seizures, all went well until 01-Jan-15. He had another seizure and again another one this morning (13 Mar). I’m extremely worried about his condition at the moment because he has become very forgetful, clumsy and his school performance is below the standard according to the teachers. We called to hospital and were informed that the appointment waiting list for a neuropsychologist is 6-8 months. In the meantime, we are in limbo. My son is writing his GSCE exams this year. We can see that he’s really putting in a lot of effort, but according to the teachers as I mentioned he’s not up to standard. As a mother, I’m drained and have no idea where to turn for help. We went to the GP this morning and she want not helpful at all. She also apparently doesn’t have any clue on what we can do. We just have to wait for the appointment with the neuropsychologist. PLEASE advise or guide me and my family in the right direction.