Advice on switching from lamotragine due to side affects

[Owl32]

I had a brain haemorrhage in August 2020. I've made a good recovery and back in full time work. I was put on kepra for 12 months after the operation and I couldn't wait to get off it as it caused severe gastric problems. Then Dec 2021 I had a seizure, totally out of the blue. I was started on lamotragine. I had 2 further seizures and have had none since. I have been on full dosage 125 m

X 2 since April. I am struggling with the side affects, constant sleepiness and brain fog. I'm looking to learn from other members , their experience switching meds. what meds to switch to and the risks

thank you in advance

[EpilepsyAction1 Partner Epilepsy Action]

Hi Owl32

Thank you for your post. It sounds like you've had an awful time with your epilepsy medicine. When someone does have side effects from their epilepsy medicine, they are hard to deal with.

Generally when someone starts a new medicine or increases their dosage they may get side effect for a few days or weeks. Unfortunately, it’s a case of finding the fine balances against feeling so unwell with side-effects and seizure control. But the role of the medicine is to give you a better quality of life, so it may be worth talking to your epilepsy specialist or nurse again about your concerns. epilepsy.org.uk/info/treatm...

Communicating with people on here and through other social media, is a really good idea. So I hope you hear from others in this community soon.

If you don’t, as well as managing the HealthUnlocked community, Epilepsy Action has other ways for you to contact others. These are:

Facebook facebook.com/epilepsyaction

Twitter twitter.com/epilepsyaction

Talk and Support epilepsy.org.uk/talk-and-su...

From our experience, in most case people find it helpful to talk to or contact people who understand what they are experiencing.

If you wish to talk to our helpline team and you live in the UK please do phone our freephone helpline 0808 800 5050.

Regards

Diane

Epilepsy Action Helpline Team

[Owl32 in reply to EpilepsyAction1]

Thank you