PTSD and epilepsy

[Murphy2541989]

Hi all new to this 7years ago I got badly assaulted as a result I had fractured skull and bleeding on my brain by a random attack almost died.as a result got diagnosed with ptsd and couple days ago I got told I've also got epilepsy dont suppose yous lovely people have any tips etc I feel very low and very depressed many thanks

[wxy123]

No wonder you're depressed. Your life has suddenly changed direction. It can help to meet others in a similar situation. I suggest trying to find support groups in your area - such as Headway and Epilepsy groups. Best of luck.

[Murphy2541989 in reply to wxy123]

Thanks so much I must try looking for a support group many thanks

[Bully915]

Are you a vet

[Murphy2541989 in reply to Bully915]

Hi no I'm not a vet

[Murphy2541989 in reply to Murphy2541989]

U there?

[Adlon57 in reply to Murphy2541989]

Have you got in touch with a support group, get in touch with people in a similar position, surprising how they can help, identify your type of epilepsy. Yes you are human, so many "legends" about the condition built up over the years! Epilepsy Action is another one you can get in touch with [on this web site] I have had JME, epilepsy for 51 years, of course you feel low, not one of your better times of your life! For getting in touch with a epilepsy specialist/neurologist for help and appropriate medication, ask your local GP for contact details! Good Luck!

[Murphy2541989]

Thanks so much for ur lovely reply been looking for support groups but cant find one

[EpilepsyAction1 Partner Epilepsy Action]

Hi

Thank you for your message. It sounds like things are hard for you at moment. You've been through a lot and a new diagnosis can be difficult to deal with.

I'm pleased to see you’ve heard from others on this platform, as sharing information and experiences can be a good idea. Can I just check you also know about our other services?

We have lots of information on our website that you might find useful, such as information about diagnosis, treatment, seizure types, first aid, daily living and wellbeing: epilepsy.org.uk

Our wellbeing section includes information and advice on low mood and where to get support: epilepsy.org.uk/info/health-matters/depression

We have our virtual support groups (epilepsy.org.uk/virtual-groups). We also have our forum4e online community (forum.epilepsy.org.uk), and are on facebook (facebook.com/epilepsyaction) and twitter (twitter.com/epilepsyaction).

Finally, please feel free to contact our helpline team. You can either email [e-mail] or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Thursday 8.30am until 8.00pm, Friday 8.30am until 4.30pm and Saturday 10.00am until 4.00pm.

Regards

Jess

Epilepsy Action Helpline Team

[LDAutie]

Hi Murphy2541989 some hospitals-i can name one that isn’t near you (but contact them-they may be able to sign post you) as someone I know goes there and he developed his epilepsy through a brain injury as well-the hospital is called Salford royal infirmary and it has a specialism (for lack of a better word,sorry) in neurology.I’ve been told the epilepsy psychs are really good for people who acquire epilepsy later in life, as they help people in this kind of sub group to give a different perspective on their epilepsy and life so can help people to build their confidence and self esteem,they can help you access your old life and interests in ways that don’t trigger your seizures,and hopefully improve your mental health.

I’ve had severe epilepsy since a baby/toddler so I’ve never known any different, and have never felt the need to see the epilepsy psych,however up until I was moved to a different care facility I did used to attend a residential specialist college for people who have a triad of conditions- autism (I’m non verbal) , epilepsy and learning (intellectual) disability . I found it very useful as I was around other people like myself and most students including myself are medical padded helmet wearers so it was good to feel not so alone, but for yourself, I wonder woud finding a local epilepsy support group you can physically attend or just getting to know everyone who uses epilepsy action help?

I think there are a lot of people who have gone through very traumatic situations like yourself-suffered brain injury and then gone on to develop epilepsy-one of my neighbours can vouch for this, you really need the right support around you,friends to back you up when you are feeling horrible and a great neurologist who doesn’t just stare at their computer.

If you ever want someone to chat to,I’m on HU every day,

Best wishes!