Women: Any women here? - Epilepsy Action

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raelynn15 profile image
7 Replies

Any women here?

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raelynn15 profile image
raelynn15
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7 Replies
Burly88 profile image
Burly88

Me 🙋🏼‍♀️ hello

raelynn15 profile image
raelynn15

Is there any advice you can give me? I’m feeling really depressed and distant from my husband after having seven grand mal seizures on Friday

Chingona profile image
Chingona in reply to raelynn15

I struggle with personal relationships after seizures, I often feel scared and insecure and convince myself that my man doesn’t love me anymore. It only lasts a couple days after seizures. I’ve decided it’s just a side effect, because it’s so much like my auras where I feel completely paranoid/scared/emotional .... it’s easier said than done but after seizures when I’m feeling this deep depression and insecurity I remind myself that it will pass because it always does. I hope this helps you! You’re not alone!

raelynn15 profile image
raelynn15 in reply to Chingona

I just feel so indifferent....but I think that’s bc I’m in a lot of pain too. My self confidence has also taken a hit bc I had just recently been without a seizure for six months. I’m constantly insecure that he’s going to get tired of dealing with it and leave me. After a seizure I feel so terrible but I try to hide it and not complain bc I feel like people are going to think I’m just exaggerating for attention or just making excuses to be lazy. This makes me very lonely and frustrated and depressed.

Chingona profile image
Chingona in reply to raelynn15

Honestly I feel exactly the same. I was six months seizure free and I stupidly got of the keto diet and within a couple weeks I started having seizures again and I took it really hard. I got immediately back on the diet but I felt completely raw on the inside and while my mom was making me crazy fussing over me my man seemed distant. I felt like I wasn’t getting the support I needed, I felt isolated and I just wanted to hide from everyone . All my plans over the holidays were ruined, my kids were disappointed and I did not want to ask for help (driving) but like I said it took a couple days maybe a week and my short term memory loss and insecure feelings slowly went away.... I do remember though when I was having a lot of seizures I was just so depressed and I’m naturally a happy person, never felt like that before. All I know is when my seizures are controlled I feel normal like myself and when they are not I’m a complete mess!

Chingona profile image
Chingona

Hi there!

raelynn15 profile image
raelynn15

I just feel so overwhelmed with everything and all the unanswered questions and the constant unknowing