Epilepsy and M.E.: I have joined this... - Epilepsy Research...

Epilepsy Research Institute

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Epilepsy and M.E.

Chimbelina profile image
4 Replies

I have joined this site in the capacity of a carer.

My son has Epilepsy and also suffers from ME/CFS.

The first signs of absence seizures were at 11, Tonic/clonic at 14 and then myoclonic.

He has had ME/CFS for over 2 years now and do to ill health had to leave school.

I have started a blog on barbarajbrown.blogspot.co.uk/

and my first posting is called Epilepsy and M.E.

I want to raise awareness of these two conditions so I hope you will visit the page and share it with your contacts by clicking on the button towards the bottom of the page. You can also leave any comments at the bottom of the page

All good wishes to those affected by epilepsy or ME/CFS

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Chimbelina profile image
Chimbelina
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4 Replies

I look forward to your befriending me on Facebook. This information can be shared and spread further for others information; please feel free to view my Timeline in due course.

Keep positive... there's always light at the end of the tunnel!

Lesley Donnelly

SandyH profile image
SandyH

Hi I have Epilepsy too, Complex Partial and Tonic Clonic, I totally know what its like. If you ever need to know anything just let me know and I will share anything with you

Hope that helps

Hi i have just been told by my doctor i have m e, i also suffer with sever deppresion and anxitey i am just trying to get my head round it all,all the best.

MissFlowerPixie profile image
MissFlowerPixie

Hello there!

Although I don't have epilepsy, I do have severe M.E., and have had for the past 21 years. Changes to my diet helped me enormously and I was wondering if you've tried your son on a gluten free diet?

Gluten is a neurotoxin and as M.E. is a complex, multi systemic, inflammatory auto immune, neurological disease it made complete sense to me to be GF, and it definitely makes a difference to my symptoms. :O)

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