Struggling with seizures and immediat... - Epilepsy Research...

Epilepsy Research Institute

2,350 members676 posts

Struggling with seizures and immediate surroundings, family

W8_04ap profile image
3 Replies

If you are from an understanding family you won't feel the pinch or pain much,the real one is dealing with your immediate neighbours friends...

Written by
W8_04ap profile image
W8_04ap
To view profiles and participate in discussions please or .
3 Replies
wul004 profile image
wul004

I've always went on the premise that ;- it's up to every one else to cope/ deal / come to terms with my Epilepsy ! due to the fact that;-

I Never Fr####in asked for the condition, nor the complications it brought to my life,(both social & personal!!)..

sweetpotatoes profile image
sweetpotatoes

I remember feeling like that when I was younger as I am really outgoing and no one knew until they saw it, which I really felt embarrassed about.

But now I have had it so long I have grown more confident and I realised that people, not all, are accepting and understanding. Those who aren’t have the issue and are usually sad people so pity them.

I have had my condition over 30 years and I have the chronic tonic seizures but I also suffered with block out seizures when I was younger.

riverboat profile image
riverboat

My family could not cope with my epilepsy and its side effects from all the drugs I was taking. I ended up getting a divorce and the judge said I was not able to look after my 5 children due to my condition so I was not able to have my children. So.......my ex had everything, children, house,furniture,pictures and I was asked to leave .

I left and moved away and bought a boat. It took the children over 15yrs to come back and talk to me and even now when they have children of their own I am still not considered their real mum, their step-mum is. So even now when I am now a grandmother I am not included in their lives because of my condition. I have come to terms with it, but they have not.

Not what you're looking for?

You may also like...

New seizures and hypothyroidism

So ive started having new seizures, I have non epileptic seizures, but for the last few months ive...
EllaRoulette profile image

Quick Question For Those With Family Members/Close Friends With Epilepsy

Hi, My name is Jasmine and I am a 26-year-old student from Manchester. I was diagnosed with...

is there a relationship between migraine headaches and seizures?

i had migraine headaches for over one year, before the headaches i used to see star like flashes of...
liljaks profile image

Hi all !!. I have between 1 and 4 seizures a day. :-(

I am 33 years old and writing from the UK in the hope of possibly gaining some...
Beeson profile image

hi, i am 23 and i have recently been diagnosed with epilepsy, i need help please!

i have an extremely rude specialist that doesn't like to answer my questions, and it seems like he...
mrepilepsy profile image

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.