Lamotrigine: My 16 yr old daughter has... - Epilepsy Research...

Epilepsy Research Institute

2,357 members677 posts

Lamotrigine

Deniseelk profile image
3 Replies

My 16 yr old daughter has just been diagnosed with epilepsy and started on Lamotrigine . She’s been titrating up from 25mg to 100mg. 4 days moving from 75 to 100mg she had a mild rash on arms , legs and back. They are tiny pinprick spots either pale pink or colourless and itchy. Our GP is uncertain if it’s the Lamotrigine or a virus. 3 days in no virus symptoms but she’s tired, bit achy and her gland under her ear ( one side only) is up. I am wondering if anybody else has experienced similar. We reduced her back down to 75mg to wait and see.

Written by
Deniseelk profile image
Deniseelk
To view profiles and participate in discussions please or .
Read more about...
3 Replies
monaco1 profile image
monaco1

I believe it is the Lamotrogine. I had the same thing for years! And had to put up with it! Go to the specialist about it. I was on 500mg a day and it was horrendous! If she's only on 100mg and has it she probably is quite sensitive. Go and check her out with the specialist.

Watchthebirdy profile image
Watchthebirdy

I had a similar thing when i started it too but did not itch and the tiny spots remained but just stuck with it - dont worry drug works and does not make me drowsy like spme others either

303127 profile image
303127 in reply toWatchthebirdy

I have been on Lamotrtoigine for several years now,a comparatively low dosage of 200mg for temporal low epilepsy.The first couple of weeks were horrible ,mentally and physically and I did worry about any spots etc. I found talking to my consultant very reassuring . I do feel for you,the anxiety of epilepsy is bad enough and the medication does take a while to set in.It is has managed my seizures and i am sure that they may have to alter the dosage at some point . I think your G.P should refer you back to a specialist to put your mind at rest.I wish you love and best wishes during this difficult time

Not what you're looking for?

You may also like...

Kepra and lamotrigine. Possible bleed on her brain, she is having a lumbar puncture today.

Hi my daughter takes max dose of Kepra and lamotrigine 400mg her Neuro has increased her dose again...
JanStott profile image

Hi all !!. I have between 1 and 4 seizures a day. :-(

I am 33 years old and writing from the UK in the hope of possibly gaining some...
Beeson profile image

Feeling alone and trapped:-(

I just want to see if anyone feels like me... I’m 44 year old man, who out of nowhere suffered a...
MR75 profile image

epilepsy playing up but nothing showed on EEG.

Hi there, i am 25 and been diagnosed with epilepsy when i was 18. They got it under control around...

Scared of Lamotrigine

Hi, I am new to this but I wonder if anyone can help. I was shocked to learn at the end of...
TMarisk profile image

Moderation team

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.