The Aura???: Just interested to know... - Epilepsy Research...

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The Aura???

Sereice profile image
8 Replies

Just interested to know what people experience before they have one?

Mine is like something from a horror, I feel like someone is behind me, like a ghost/spirit. Scary sinking feeling in my tummy abit like when you fly, 2 seconds i look over my shoulder & always say awww noooo & have learnt to try & sit down fast. Its the only bit i remember. I have generalised seizures.

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Sereice profile image
Sereice
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8 Replies
Lj08 profile image
Lj08

I used to want a full English before I had a fit never ate. 😃😃

That sounds horrible! I can't imagine going into a generalised seizure full of fear :S

I have two possible auras - one is my heart beats really fast and I feel like my body is a wave or moving like a wave (writing that down does that even make sense!?!).

Or I get a feeling like I am gonna be sick in my stomach which means I usually end up heading to the bathroom. Then I start feeling weak and distant and try to sit/crawl before I lose consciousness. It usually means I will have tonic-clonic seizure.

Steph72 profile image
Steph72

The most recent seizure i had my Aura was similar to yours. I was home alone i had a raising pins and needles feeling in my head, thought 'oh sh*t' as that is my normal aura with the pins and needles starting from my hand. Then moved from the kitchen as i was cooking at the time (home alone), to the living room. I got to the sofa and had the strongest feeling that someone was behind me. Then i swore a lot and that's the last thing i remember.

I hadn't experienced that feeling before.

Sereice profile image
Sereice in reply toSteph72

Its Evil I hate it... I feel like I'm cursed. I thought i was only 1 experiencing it. Thats why I set up this post, cause its so weird! I'd rather communicate wit real ppl on here Tho... Cause reading books/watchin videos etc, just makes me feel so sad 😔 & scared that I look like that & it happens 2 me! I had nightmares & couldn't read past 3rd pg of the book:A smell of burning Colin Grant

Steph72 profile image
Steph72 in reply toSereice

I started reading Surviving Wonderland and i couldn't finish it ether. The trouble is it's such a varied condition, that ones person experience is so different to another.

Cavallo profile image
Cavallo

I get a feeling a split second before one. In which I usually say to myself 'Oh shit not again.' Though on occasions I've got angry, clenched my fists and sworn, then it has gone away!!

Sereice profile image
Sereice in reply toCavallo

Wow 😯

That means your in control... Plz can I ask what type of seizures you have?

Thx

Cavallo profile image
Cavallo in reply toSereice

No idea what type of seizures I have, have forgotten. It is only on rare occasions that I have chance to react and get angry whilst clenching fists. Also only recently that I have done this. Not really what I would call control though a form of prevention.

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