Has anyone had adenomyosis diagnosed from... - Endometriosis UK

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Has anyone had adenomyosis diagnosed from a CT scan...

jemimavintage profile image
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Hi all - I'm having a CT scan on friday (and some X-rays and bloody tests). I know that ultimately it's a laparoscopy that can diagnose endo but I'm not going down that route. I also don't have access to an MRI test at the moment, only a CT. My question is: has anyone had adeno diagnosed with a CT....or *any* gynae issues diagnosed with a CT? I have month round awful burning in my upper abdomen that feels as though I've been kicked in the gut by a donkey - and it's not internal (i.e. acid related), it feels external (i.e. squished organs related). This is what I'm hoping can be seen on the CT......an upwards movement of my abdo bits and bobs... due to.....enlarged uterus, cyst or whatever.. I'm 48....have 10 days intense period pain/donkey kick abdomen pain, followed by donkey kick pain for the rest of the month. Periods aren't heavy, bleed wise. Transvaginal apparently was *fine*...although the tech said one of the ovaries wasn't as bouncy as the other. GP suggested the pain is all in my head.....grrrr..... So yep, CT - what's it ever shown anyone? anything? anything at all? thanks for comments :)

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NW248 profile image
NW248

My doctor and specialists were pretty much telling me it was all in my head, particularly and area of bowel that I said had something wrong and they said was fine. They insisted there were no cysts anywhere. Had my endo removed and hysterectomy last week and felt better than I have felt for years, even straight after the operation. The registrar said there were loads of adhesions and cysts removed. The area where I said there was definitely something was where my bowel was adhered to the abdominal wall by the endometriosis. So don't listen to your doctors! My last ultrasound only showed a fluid filled fallopian tube that "wasn't a problem" according to the previous gynae.

The MRI was what the endo specialist used to assess the extent of the problem. They seem to be going more for MRI's than laps for diagnosing endometriosis and a lap can't look everywhere, it's also a lot less invasive. Whilst a lap will be needed to remove it anyway, at least they have a better idea before they go in how much there is and can get the necessary consent if they need to do a hysterectomy.

Can I ask why you are not getting and MRI, who is thinking that a CT is the way to go rather than an MRI? Have you asked for an MRI and been refused? If the CT doesn't come up with anything I would insist on seeing someone more specialist and demand to be referred to one on this list bsge.org.uk/ec-BSGE-accredi...

jemimavintage profile image
jemimavintage in reply to NW248

I'm in the US and not back to the UK before the end of april.. The dr I went to see yesterday for pain meds offers a plan that includes some level of testing within a monthly fee. Unfortunately an MRI is not one of those tests. And I wasn't expecting to get *any* tests prior to coming back to the UK, so my thinking is that even with a CT, if anything is out of place - i.e. squished organs - then perhaps a CT will see that at least.. (I understand that an MRI is preferable) - so I was wondering if anyone had had anything at all seen on a CT - squished up organs, misshapen uterus....anything?

pessell profile image
pessell

hi

i had MRi to say i had adynemosis, but has shown up on my internal vag scan

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