Fife

[Sam341]

Any people from Fife on here? And have went to see a endro specialist?

Or had endro removed by a gynae?

Would really like to hear some of your experiances.

Thanks

Sam

[Amanda2409]

Hi Sam I live in Fife, where are you?

I haven't seen an Endo specialist. Been bothered with endo got years finally had total hysterectomy in August of last year and still bothered.....let me know your circumstances maybe we can chat?x

[dabba76]

Hi I'm from Perth. Just had my 2nd surgery at the local hospital. I'm interested in any replies you get. They didn't manage to remove all of my endo & im not sure what the future holds x

[Sam341 in reply to dabba76]

Hi dabba

I have option of going to a tayside hospital and Fife hospital fir any treatment as both hospitals are 1 hours away from where I live. My GP automaticity picks Fife but if tayside is better I will be able to go there. Was it tayside you went to?

Sorry trying to not mention a hospitals name.

[Caitlynf]

Hi, I also live in Fife.

Had a lap for diagnosis and removal of endo last January.

Recently been to see a new consultant who didn't have my notes and was more interested in my bowels than what I was telling him. Information and care hasn't been the best really.

X

[Sam341]

Thanks for your replies!!

As you can probably tell I just wanted to check out how people are getting treated in Fife. My doc wont refer me to endro specialist even though the lady who operated on me last month wasn't very good in my opinion.

My story.

I have had endro symptoms sinse I was 13, alway got fobbed off with the usual (constipation, bad periods, urine problems), I was put on the pill and things settled until I fell pregnant at 19 (on the pill). I then went on to have a few miscarriages, no one would look at it as its "normal" to miscarry. I had back pain a lot and pelvic pain and was told it was connected to pregnancies as my body didn't get much rest over 2 year period, I accepted that. I then had my second child at 25, who is now two. I was using crutches due to the pelvic pain, which was diagnosed as SPD, 2 years later, still classed as having SPD as I have excruciating lower back, pelvic and leg pain. Iv spent a lot of money trying get this "SPD" fixed as nhs do not treat or investigate someone who has SPD. They get useless post natal group physio. (Sorry to sound so bitter about it, it ruined my life for 2.5 living like this with no help or support). For the past few month my Physio said he didn't believe iv had spd at all but I'd have to pay a lot for him to investigate so I wasn't able to do anything more.

So overall iv been fobbed of and all the symptoms were there. Iv had the mirena coil since by son was born so I don't get periods. Thank god!!

Then a few months ago my stomach got really sore, I was sick, dyhdrated and just really ill with the pain so I was put into my local hospital for a week. They did tests/scans/X-rays and sent me home once I was hydrated (still in a lot of pain) So I went to my gp and he was fab! Gave me antibiotics for an intestine infections as he thought I had something causing an infection in my intentine And he said my scan showed a cyst. He was right and it helped a lot. He then got me refered for a lap to diagnose emdrometriosis and he was right again, I had it. He had been saying for years that he thought I had it.

So overal my gp was God in my eyes. I had my lap last month to diagnose, I was told I had it but not much info on where, she just said in my left side and a small bit on my right overy. And that I had to go on the pill. And she also said my coil is lost. Turns out she hasn't looked in all area for emdro. And Won't remove anything. And has lost my coil and isn't doing anything about the fact it's in there somewhere.

I asked my gp if I could go to the specialist in Scotland. He said I'd have to have sever emdro for that, so no.

Now trying to figure out what to do because I can feel the pain building up again and cannot end up in the same state as last time.

I want to go back to the doctor soon but it's June 8th before I can see someone and it's just a random doctor, not the one who helped me before.

So any help/advice is welcome.

Is tayside good?? Or Edinburgh?? Do I fight for a referral?

My lap was in Fife.