Hello all,
I experienced a second 'vision Aura' yesterday. The last one was about 3 months ago.
I am interested to learn if this is a common affect after Enc or just a lovely new unrelated joy in my life!
Does anyone else suffer from these and any ideas on how to prevent them?
Mine started as a pixelated crescent shape in my left eye that crept over to my right eye with a kaleidoscope effect flashing image that disappeared out to the right of my eye. No typical migraine followed.
Thanks!
No never had since the acute phase was being treated
Hi Alpappy, thank you for sharing, I never had these in the acute stage and so I have found it a bit scary!
Pleased that they stopped for you.
Hi GreenBamboo - I recognise this. Mine are like an arc of zig-zags. Just like a kaleidoscope effect as you say and it moves from left to right and eventually disappears.
I’ve had these on and off on a very infrequent basis for many years - even before I had Enc. I’m not a clinician of course but if it’s the same thing your describing I don’t necessarily think they are Auras. I even remember my Father describing the same effect once. Out of interest I did notice the last time it happened my blood pressure went up as well. Maybe I was stressed (or more stressed than usual these days🤪).
Keep well.
Thank you Remos, it sounds as though they are just 'one of those things!'
The optometrist said that it was a vision aura, sometimes referred to as a silent migraine. I hope that the recent one is the last!
Hi I ve had that for years and was told migraine.Worse after enc but told I now have Horner s syndrome as a result of ence which makes it worse.Check your eyes.I had to see a neuro opthamologist and not normal opthamologist.enc is just the gift that keeps on giving!
Hi Sleepless68,
Thank you for your message.
In your experience have the visual auras stayed at the same intensity or have they got better/worse?
I have only had 2 attacks and found them really unsettling.
I have an eye appt on 9/12, the earliest I could get. I am hoping to be reassured.
It is mind-blowing to read everyone's experience of Enc and how many different wacky ways it can affect individuals!
Mine worse if stressed but had migraine before enceph.Good luck to you.They did mri with dye to make sure.
Hi - my son has similar episodes. He's 8 years old. He once said it looks like the halo around the moon and other times he describes it as dots/spots in all different colours, but usually white/black/red. He's starting seeing them at night, which makes him scared as they distort everything. We've found in the past that steroids have helped and he's just started another round of steroid infusions, so I'm really hopeful this helps again. We had his eyes checked by the ophthalmologist at the children's hospital, but his vision is perfect and he couldn't find anything to explain it (other than encephalitis). I hope this information is helpful to you in some way. Warmest Regards.
