Mri updates

[Heavychunky1]

Well after my second mri with contrast in October I have finally got results letter through from neuro consultant, a basically saying there is an improvement since the mri in June, however she is keeping me on her patient list for time being for review,

[Gandalf2]

Hi HC, that sounds like good news as long as the improvements continue. Best of Luck, G2

[Heavychunky1 in reply to Gandalf2]

Good morning hope you are keeping well , The way the letter is written for once is straight to the point, which sound like a good thing, just got to the point of thing mri scans as I now suffer from a really bad dry mouth and throat blocked nose which makes layen still for the scans not the easiest task, but somehow I do manage, think the helping hand is my neuro physiologist meets outside with me to help with the getting back to interact with people and social situations , that’s always interesting, onwards and upwards still

[Gandalf2 in reply to Heavychunky1]

Hi HC, It's a quiet morning here in the UK, just had bkfst, cereal, tea and toast.

It's great when support arrives and a bit of expertise is offered rather than being left in what seems like the dark. They can see the whole landscape whereas I/we just have a small, largely unexplored corner.

Your dry mouth and throat issue rings a bell as I'm recovering from a throat and chest infection which was pretty worrying as my immune system is not great these days. It was like swallowing needles, could hardly speak or breathe.

Two courses of anti-biotics sorted it out. But with Enc every infection becomes a worry - more seizures? back in the ward on drips?

Your neuro physiologist sounds very good, often the docs lack awareness of how one's feelings are but not always I hasten to add! Since our rehab support has been turning up we are much reassured, diet, exercise and graded steps forward.

Interacting with people and social situations can work out pretty well I find. Negative ones are usually stressed-out people with little time for ones like us who have been forced to take a step back from the pressures of everyday life. Having said that it is my wife who is doing most of the work. Without her support I'd probably still be on the ward looking forward to an extra biscuit with my tea!

Best Wishes, G2

Tea and biscuits

[Heavychunky1 in reply to Gandalf2]

I have to totally agree with what you said there, and with the partner doing everything, my fiancé is trying to do everything from house to essentials and look after kids, it is great that I am at the stage where I can help a lot more with things, in honesty without her I’d have been struggling through this enc and probably would have died as she was the one who acted and called doctors , as I was settled to the point I had the flu, she had been a god send

[Gandalf2 in reply to Heavychunky1]

Hurray for ladies!

[Wygella]

Hi Both. Men are awesome too. My husband has been a total rock and support through the last three years. He also called the ambulance and probably along with amazing doctors, saved my brain as like us all, the seizures were bad. I’m so glad you’ve won the postcode lottery with your support HC. They sound really good. I think anxiety and concern in social situations is probably the longest lasting effect I have. I had HSV and still get cold sores, especially this time of your. And Ping the anxiety kicks in and I want to hide until it goes to keep myself safe. Let’s all keep moving forward!

[Ocean96]

Hi there!

Great news! How do you feel about that? Do you notice an improvement in yourself?