does anybody else still have hypermob... - Ehlers-Danlos Sup...
does anybody else still have hypermobile joints getting worse in thier 50s.
My symptoms are definitely getting worse. I'm 42. Haven't been officially diagnosed yet but drs are suggesting eds. makes sense to me.
I was diagnosed at 26yrs old, I'm now 34yrs & definitely noticing my joints 'flare up' on an increasing basis. I have been told since diagnosis that I'm doing physiotherapy/hydrotherapy to 'prolong' the onset of arthritis but that I should expect I will eventually get it (to add to my growing list)
My Mum hasn't been formerly diagnosed but I had to get it from somewhere and she's 69 next month. She can still sit cross legged and has problems with her shoulders and ankles. I think it depends on the person. I was diagnosed at 15 and my joints have gradually got worse. I am now 29 and my hips dislocate many times a day. So people improve with age as you naturally get stiffer as you get older but I'm guessing if you damage the joints in younger years then those are the joints you'll have problems with later on xx
missteal,that seems to make a lot of sense,I sit with my leg twisted round the other one.also I have my feet turned inwards,I dont know why but the only way I can get rid of pain or discomfort is to put my body in really weird positions,especially my arms,neck and head and feet.i was sat in childrens hospital last week as my daughter had appointment,we started doind bendy things and the person sitting next to us looked like he wanted to be sick and turned away.the only thing i cant do now is put my hands down flat on the floor whilst standing as i have got arthritis in my back.also can anyone advise ,my daughter who is 13 finds it difficult to swim,when she puts her arms out to do a stroke,she feels her shoulders clunking and its painful and for a couple of days after.she has got it quite bad,she also has another condition as well though,and had biopsy done.she als has to go to heart outpatients at childrens hospital.if shoulders are sublaxing,would swimming strenthgen them ?thankyou
It is strange how other people react to us 'bendys' with some looking/staring in awe & others turning away repulsed. I am less bendy with age too but I think it is more the accompanying pain that stops me.
I'm sorry your daughter is suffering discomfort swimming (it's one thing my girls & I love) & don't know whether it's her EDS or another condition or a combo of things to blame (I know having secondary Raynauds alongside my EDS can often cause my hands & feet to spasm/cramp after getting out of the pool). Generally swimming can be thought to help EDS as the water supports your joints/muscles whilst you exercise them but more often children/teenagers are advised to try gymnastics/ballet to help teach them how to use/strengthen their joint muscles without 'overuse' of them. If it hasn't happened already, a trip to occupational therapy could help out in this area. Xx
,the pe teacher is arranging some dance lessons,at the moment I am erring on the side of caution about swimming and asking for her to be excused,while she is getting checked out at the hospital.she has another appointment end of august.she loves horses and spends a lot of time in the stables,everything has a risk,but you have to let them enjoy stuff dont you ?yes I definately think my daughter needs to be seen by an occupational therapist,i see one myself,I will ring her tomorrow and enquire about it,thank for the suggestionx
The EDSers in my family seem to develop arthritis as they get older. Touch wood, I don't seem to be suffering from it yet, but then I am only 34. I am fairly certain that I will suffer from joint problems in the future.
I agree with Springsong in relation to swimming and EDS, although I would add that warm water is better than cold water because it helps to relax the muscles and prevent them from spasming and you are therefore less likely to strain them or injure yourself. On this basis I undertook a course of hydrotherapy last year.
I disagree with the suggestion that hypermobility lessens with age.Joints that are damaged do. But as it is the connective tissues that are at fault the problems persist.
hi all i have knees that keep dislocating upto 20 times a day i am in constant pain and have to take someone with me when i go out as i can be standing sitting down when my knees pop out very painful when getting them back in . i have been to my drs and all he keeps saying is my knees cannot dislocate like i have said, dont know how to get them to listen to me any ideas please
mine has definitely got worse the last year or so ( am 50). I did read that changes in hormones at menopause can be the cause
I am double Jointed in my arms and legs. If my husband pulls on my legs while I'm laying down they come out of socket and slide back in. It makes him so sick to feel it.its a wonderful feeling for me. My arms do not lay normal. I have no joint in my elbow or under my arm that is made like normal people. I am 44 yrs old and I was diagnosed a few weeks ago with EDS TYPE 3. I have severe Restless leg syndrome and I also have pain in my arms, wrist, shoulders. Sometimes I feel like I have bruises on my arms. Last night I had a large lump that come up under my for arm that was hard and tender to the touch. I hurt so bad. Tonight it's gone. Just like that. I have fatigue, tiredness, I can't get my day started especially on the weekend. I work a full time job, 9am to 6 or 7 pm. Typing and on phone with 50 to 75 customers daily which create pain in my hands, arms, wrist and shoulders. My legs also hurt. I take tramadol and Lortab. Exercise on my treadmill slow and steady until I can work up a good speed. My arms never hurt until a yr ago. I have dealt with the pain and discomfort. I couldn't take it no more as it go much worse. I went to a specialist who diagnosed me.
Yes it gets worse...
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