TOO TIRED

[47compayne]

I just cant do the things I want to do, I get so tired, I spend most of my time in bed..just looking for moral support , thanks

[Pogollie]

I totally understand that feeling it is so frustrating and so hard for people who have never experienced it to understand. Don't let yourself get down, and please remember you are not alone. Hugs x

[sonia72 in reply to Pogollie]

Hi i can understand too, and it almost feels"you dont have a life" how do others deal with this as i find im just getting worse and not better, has anyone any suggestions, i just cant get my head around having M.E and what im meant to do with it! everyday i have to push and push myself, and feel guilty for being so tired

[suportme]

I know how hard it is to just lift your head off the pillar and through the covers off and climb out of bed, or try to focus on the day. But you have to keep trying and moving forward so that each day is not the same, Focus on how things were before you became ill, and try to be positive, I found keeping diary of positive thoughts and memories, helps to make the day easer. even though the nights can be long focusing on the positive things of you and your family have achieved over the year, and write what you want to try and do the next day, something like getting up and walking around your home, pushing the pain and discomfort behind you. Yes keep pushing forward. sitting in bed or a chair and just move your arms and legs up and do light exercise. i hope this helps sonia72.

from Mona

[walkerl]

Hey look at you, you wrote a post and put it on line.

How cool is that?

And, unless I have already bored you, you are now reading the replies you are getting to that post.

Little by little you will get to do what you want to, even if it is just initially in your imagination (which can take you anywhere you want to go)

I have decided that it I am happier geting forgiveness off my body AFTER I have done something rather than asking its permissin before I do it.

Do I end up in bed totaly flaked, Yep...is it worth it..hell yes.

[chrisdooks]

It's totally totally freezing outside. You are in the best place. I had a wander around Arran two years ago when it was very cold. I recorded this, it's bonkers and relaxing at the same time. You might be too tired to listen, that's cool, but if not it might be a bit of fun. chrisdooks.bandcamp.com/alb...

[callypops]

It isnt tiredness though is it, that word doesnt describe the crippling devastating fatigue that me sufferers feel. I had some advice from a specialist who said 'be kind to yourself and dont stand if you can sit, and dont sit if you can lay down'. I live as normal a life as pssible by dragging myself through each day. The hardest part is that ME is an invisible illness and i dont know if others get this but people look at me with my red face and tired eyes and say 'you're looking well lol' if only you were inside this body for an hour ha ha. It is hard, and you're not alone, the rest of us understand, and after all of this moaning I still think its a wonderful life x