I've had cfs/me for about 8 years and its still pretty bad. I'm virtually housebound and my husband is my carer-he's just had a double bypass! When I went to hosp the last time to see my Con, he told me I would be seen by his replacement as my symtoms are so severe and I also take alot of meds(also daiagnosed with Cluster migraine and short term memory loss.
Then I received a letter from the hospital teling me I don't meet their criteria and that from now on I would be treated by my G.P. I've got a fab G.P but he's not a specialist, I'm also very concerned that I've received a questionnarie from Jobcenterplus, they want supporting evidence and ask when I last saw my Con.
I've been left out to dry. I had a great life before this! Please advise-thank you