always in bed?

[hannalaura]

This cant be right, always seem to be sleeping, cant keep appointments due to wanting to sleep, what do we have to do to keep awake? 2 years of this now I can see no end to this, its relentless. so here I go again, up the stairs to my very familiar bed.

[walkerl]

This is just MY way of dealing with my ME, I'm not saying it will work for anyone else. After years of suffering I experimented and researched and now I take a trio of different supplements twice a day in a three month rotation. so for instance I will take:-

Echinacea, 7seas health oil immune defence and CoQ10 in the morning

7seas health oil active mind, Echinacea, and multivitamins in the evening

and a prescribed Quinine Bisulphate in the night

Then the next month I will swap the Echinacea for chelated zinc or manuka capsules and the 7seas health oil for another in t's range - immune defence or healthy heart

It's taken, and still is taking a certain amount of trial and error to get a good balance along with setting of alarms to remind me to take the things! (ME mind fog is a real pain sometimes)

I will also try to get out in the sun whenever I can. (Pre taking these tabs this was a no-no as I would break out in all sorts of rashes and feel very poorly, but since starting this it has made a huge difference) and being in the sun also does me the power of good and even in the winter I will wrap up and get out in the sun when I can.

I set targets for myself everyday and really aim to do them, but I don't beat myself up too much if I fail to meet them.

I now work 3 days a week! My line manager, colleagues and the manager next up all know about my ME and are very supportive which is also a massive boost. I need that friendship and care.

It's been really hard to get were I am, and just yesterday I slept the afternoon and evening away, this morning I was wallowing on a bench in the sun and I'm fairly sure I will be resting up this afternoon but I'm much better than I was.

Some of this I think is/was state of mind and support of loved ones/friends. I try really hard not to be ill on my work days and the knowledge that I have 4 days a week to 'collapse' on is a help.

I miss being the really active person that I once was but I'm determined that my ME will nor stop me being me.

As I said this is just MY way of coping, it's been and continues to be a lot of trial and error and mucho learning but, in the main, it works for me.

Good luck,

Liz