Hi everyone, I am new to this group and Health Unlocked as well. I suffer from Susac's Syndrome which is an rare auto immune disease which attacks the very small blood vessels in the brain, retina, and inner ear and has caused me to lose my low frequency hearing. I can't find a community for Susac's on here so thought I'd post in this community to find out if anyone else suffers from low frequency hearing loss and if there is anyone on here that also suffers from Susac's like me? Be nice to not feel alone in this.
Thanks