Low frequency hearing loss

[nic_skev]

Hi everyone, I am new to this group and Health Unlocked as well. I suffer from Susac's Syndrome which is an rare auto immune disease which attacks the very small blood vessels in the brain, retina, and inner ear and has caused me to lose my low frequency hearing. I can't find a community for Susac's on here so thought I'd post in this community to find out if anyone else suffers from low frequency hearing loss and if there is anyone on here that also suffers from Susac's like me? Be nice to not feel alone in this.

Thanks

[jayfer]

Sorry, never heard of susacs . My hearing loss is high frequency , I hope you do find someone who you can chat to though

[nic_skev in reply to jayfer]

Not many people have heard of Susac's to be honest...even doctors!! I hope there is someone on here two who I can chat with Thanks

[Hidden]

i was born unable to hear low tone sounds. i am considered to be low tone deaf.

[nic_skev in reply to Hidden]

Thanks for replying to me and sorry for my late reply....I don't come on here that often! Do you have hearing and if so which one do you have? I have resound Linx2 9 hearing aids and they do help but not so much sometimes to be honest!