new here

Hi all............

Didn't know there was a group for Deaf/Hearing impaired ,

Born hearing impaired then both eardrums burst when i was about 5yrs old at school went to hearing school till i was 16 then onto a deaf school in Doncaster guess you might say i fell through the net lol . I'm deaf in high pitch and now in low i hear sounds but not words if that makes sense hmm... i have trouble trying to explain to folk how i hear them talk although i don't understand folk that live North of where i live nor foreign accents sadly most the doctors and specialist i see are foreign and i have to take my step mother with me (rather i didn't as i don't always want her to know stuff) anyone know what i can do? how i discribe how i hear some folk is how music score goes if that makes sense . Missed out on a lot of schooling feel so cheated my deafness is a royal pain in the backside not many folk believe me guess i've learnt to get along best i know how . sorry if i've come across odd nearly 5am most probs what i've written doesn't make much sense lol thanks for reading anyway .

14 Replies

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MickeyJoints

8 months ago

Hi Gypsy,

This forum is not so busy...

I think I understand what you've said when trying to explain to others about your deafness. I try to explain to my wife how when she talks facing away, I have great difficulty hearing her. I've tried explaining what it's like (muffled and muddy), but unless you have a loss, I think it's difficult to understand.

I'm adult onset with two HAs and just got the Oticon Synergy from the NHS - bless 'em, I'm grateful! I gather my loss is now moderate and these new aids are a real help. I can turn the TV down again!

But from birth with accidents - that has to have been tough. Up at 5 AM? I'm usually up then too, but from arthritis pains. I used to be excellent with accents but they are now becoming quite a problem for me. I hear what you're saying...

Oh well, these things are sent to try us - and they do!

gypsy49

in reply to MickeyJoints

Hi MickyJ

Thank you for replying to my thread

I've tried different hearing aids since i was a child non makes any difference to words sounds yes make loud but words doesn't make any difference just louder not sure if its cos i only hear 4 letter of the alphabet or what , My father never understood my deafness doubt he ever will when i visit he won't let me have subtitles on saying they annoy him lol not sure if i annoy him whan i ask whats being said haha, Very rare i go to bed before 4 or 5am i suffer with RLS and just found out about BSF along with fibro last week i slept 4hrs in 4 days bad week for me didn't sleep last night fingers cross i do tonight .

yeah accents getting tougher now for me too think more because folk moving into area's where we never had outsiders (small town even smaller village lol ) only in the last 6 months have outsiders being moving in i don't live in town myself just the even smaller village .

Aye true about things sent to try us out and by gosh they do life eh! get on with it best we know how different time different era years ago told can't do that can't do this won't be able to do ...... now days younger folk have better chances i think although shutting deaf schools is wrong specially in small town where might only be one child thats deaf within hearing school cut off no deaf culture either . oppss sorry babbled on typical of me .

I have subtitles on as does my daughter she too has a hearing loss if i close my eyes i wouldn't know a damn words wwith or without hearing aids they just don't clear words up sound the same just louder im sure there's a word for it just can't think ,

RLS been a part of my life since i was 8yrs old again something you can't see hmm well... an if was to live with me my life in the hands of rls lol couple hrs sleep here and there best i can do is 6 to 8 hrs week sleep and thats a good week lol crazy.......... life , BFS=Benign fasciculation syndrome watching my calf muscles move around on their own almost like watching a heavly expectant mother baby moving weird feeling so no rest for the muscles at all that goes on 24/7 too , how are you with vibrations ? i know im highly sensitive living down a lane in the stick i can feel the lorries coming down the main road or feel thunder a good 10 to 15 mins before it actually here always knows when there's a good storm coming has it's uses i get my washing in before it hits ;o) .

going to look at that site you've put on here hopefully it'll be interesting thank you :o)

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