happy to join the community

[Liron]

hello,

my wife have cystinuria for over then 10 years.

at the last 2 years we use tiopronin 250 mg and the kidney stones are still appears.

we are very happy to join the community and hope to have big benefits from it.

[MattBultitude Administrator]

Welcome to the forum/ community. We are hoping this will prove to be a useful resource for patients around the world with cystinuria. Thank you for registering and posting.

[neilsss Administrator]

Hi Liron - good to meet you. I'm not sure if you made it to the Cystinuria day at Guy's recently but there was a lot of very useful information about how to reduce stone formation. Apart from hydration keeping high ph urine can be extremely effective, as can a diet low in animal protein (which also helps to keep PH high).