Hi I am a new member to this group but have suffered with Cystinuria and subsequent stones since first diagnosed in about 1963. Have been on Penacillimine for about 45 years. Currently I have a staghorn stone in my left kidney a small stone in the right and a bladder stone and am having a long wait for an NHS appointment to get these stones sorted. With no stones for the past 15 - 20 years I wonder why the stones have returned now is this to do with ageing or may be the menopause.
With the laser techniques available I am hoping for a good outcome so much different to open surgery which I have had before.
