no quality of life.

[doddy]

hi my fellow parkie suffers

Has anyone been on stalevo,pramipexole ,sinimet,rasagiline. I have been on this combation

for a couple of weeks .I get freezing when i cannt move , feel very low, cannt hardly move in the morning when i wake up this morning it took two hours before i could get out of bed.

I SHOULD BE OVER THE MOON BECAUSE I HAVE JUST GOT ENGAGED AT 60 PLUS AND HAVING PARKINSONS. I have to get this sorted any one had a similar problems.

doddy on the wirral

[Joealt]

Every morning around 10 AM I start feeling a hissy fit coming on so I go to my bedroom and deep breath it away. This morning my lovely wife told me to say " Go away demons. I have better things to do. Go back to the Lake of Fire! ".

[parkie-Al]

Hi Doddy,

I was on stalevo and had to get my GP to put me back on Sinimet , i could not function when on Stalevo, much better now , i only take Requip xl and sinimet, it works for me, sorry to here about your troubles, as you know we are all different what works for me may not work for you,

i have a video of my self when i was on stalevo i will try and post it so you can see how bad the side effects were

have a great New Year

Al

[compucure in reply to parkie-Al]

Al what symptoms did you have with Stalevo and what dosage were you on? Tony

[doddy in reply to parkie-Al]

thank you for this very helpful reply.If you could try and post video I would really appreciate that .

have a good new year

doddy

[Hidden]

Have you tried taking your first medication while in bed. set the alarm, you may find it easier to get up in a morning after it has kicked in.

just a thought.

Wish you all the best with your engagement

[doddy in reply to Hidden]

hi thanks for your reply . Yes I take my first meds in bed at 7am but it still takes 2 hours to get out of bed

kind regards

doddy

[larry33b]

i had to stop the stalevo because of severe depression.

[PatV]

I have same question.

Stalevo didn't work for me. Wore off suddenly and messed up my already taxed gut

Otherwise happy for you. I had my most passionate relationship in my 60's. <3

[jernor]

Congratulations on your engagement, so happy for you! I agree with a previous post that brought up over medication--that is what we think happened to my husband two months ago, he virtually fell out of bed and could not move a muscle for over an hour. My eldest son came over to help and then created a spreadsheet to help track the meds--our neurologist, urologist and GP were very impressed with the program. My husband is now on the Neupro patch that has helped maintain Carbi/levo levels on a more even keel. He was diagnosed with PD over 20 years ago.

[doddy]

thanks for your reply very helpful i only take one sinemet in middle of night when i wake up. Stalevo I take 125mg x 7 a day and 1 Azilect and pramipexxxx .35. I think I am overmedicated and I am all for reducing will let you know how i get on

kind regards doddy

[doddy]

thank you for your reply very kind of you to take the time . I think I am overmedicated. will let you know. How do you know Carbi/levo levels are on an even keel.

kind regards

doddy.

[Pete-1]

Stalevo is the same as Sinemet but with the addition of "Entacapone" This chemical inhibits the brain chemical that breaks down dopamine once that dopamine has been used. Thus there should be more dopamine in the system for the brain to recycle, so to speak.

So entacapone preserves dopamine for later use as a neurotransmitter rather than await production of dopamine from the remaining good brain cells and plus that made from levodopa delivered via the medication, sinemet and stalevo.