wonderful poem; and so appropriate...I recently attended a family function and one of the younger adults asked if I was OK; I looked depressed or upset...I realized I need to somehow find a time to address the family members and let them know that my lack of emotional signings with my face is a symptom of my disease progressing, not that I am bored or inattentive. My husband feels sometimes I am not paying attention to him when he talks about something important...and its untrue, I just can't emulate the expressions as I did of old. In fact without the families comments I would not have noticed the changes that apparently are occurring. Saddest part is that all the smiles and joy are still here inside...just trapped behind lessening movements.
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