Is anyone currently taking Zandopa with g... - Cure Parkinson's
Is anyone currently taking Zandopa with good results? Was there any immediate relief?
Hello,
I have tried Zandopa previously and found it difficult to et a dosage that was suitable for my needs. So, a great deal of experimentation is required. There is a 7.5grm scoop in the container, but you may need less or more than this amount. Also, the taste is rather sweet and may contain sugar or some artificial sweetener. I tried combining Zandopa with my Sinemet and had mixed results, so I gave up. The good thing about Zandopa is that it appears to contain precise amounts of mucuna pruriens if you are willing to persist with your experiment.
Norton
HI
you all thaking about zandopa as a powder why not the capsules sold by NOW compeny in USA
Personally, I have found the powder to be more effective, I don't know why, although I do use the capsules when I'm out and about because they are portable.
How much do you take per day when you use the capsuls I dont know how many is allowed to take I am using 4 capsuls and idont fell thats enough.
This is the thing about taking 'alternative' stuff (for want of a better word) - unlike with prescribed medication, there is no recommended dosage. You need to do two things: research (there's loads written on this site and across the Internet on Mucuna Puriens and Zandopa) and cautiously experiment until you find what works for you and if it works for you - it may not.
Hi Norton,
I had written about my Zandopa usage a while back. I've been taking it ( 4mo.s now ) with a little bit of Sinemet - it works great for me. My dosage is a little less than the red scoop plus 1/2 of Sinemet 25/100 - 3x a day. It started to work right form the beginning. Although, initially taking the full scoop - which made me nauseous. I cut back a little and keep the 1/2 tablet of Sinemet, mostly for the carbidopa part. I feel better that I am not having to take so much Sinemet. Was diaganosed 10 yrs. ago, and had increased to Sinemet dosage to 8 a day. That' s when I started looking into Zandopa. Am ecstatic that I was able to replace so much of the Sinemet, and am not quite as worried about my future because of it. I don't enjoy the powder, but it's a small price to pay for feeling a lot better through out the day with much less off and on hated that flu-like symptom that I had! BTW, I use a straw to drink up the powder, since it settles some. Also dump the Zandopa bottle after opening into tupperware - to make it easier to scoop out and measure. Zandopa bottle should be shorter w/ a wider rim.
Hope it works for you. Good luck.
Barbara
Hello Barbara,
It was good to read your post re replacing some of your sinemet with Zandopa with pleasing results. I am prepared to try again in an effort to improve my symptoms which are tremors in my arms, body and poor sleep duration (insomnia). I do not know if they are similar symptoms to yours and can I expect such good results as you are experiencing. Currently, I take X6 25/100 sinemet a day divided into three doses and achieve an 'on time' of about three hours. In preparation for my next experiment with the mucuna pruriens I have bought some Himalayan tablets which contain 15% of Ldopa, but no sweetener such as is in the Zandopa. I hope to get similar beneficial results as you after experimenting to get the right dose.
Thank you for your reply.
Norton
Hi Allnatural....I have ordered organic powdered munuca prurins and the zandopa. I take 3x 25/100 sinement, 1 azilect and 3 1/2 requip a day. I am tirating off the azilect since it is an MAOI.......not to be taken with zandopa. My question is how much to take of muncua prurins with 1/2 25/100 sinement a day. How much zandopa is equivalent to 1/2 25/100 sinement? You said you decreased 5 25/100 sinement with 3 doses of slightly under 1 scoop.....does that mean that 1 scoop equals 1 1/2 sinement?
Thank you,
BMakla54
Hi bmakia54,
I'm very glad to hear that you have ordered and are ready to start w/ Zandopa. If you stick to it ( I have thrown up this stuff a few mornings when I first started ) I think you'll feel better. It's not very pleasant ( better if you add a little juice - fresh squeezed if possible ). The reason I take about 3/4 a scoop is because of the nausea problem. I whole red scoop was too much for me. For me, just 3/4 a scoop was about 1 sinemet and taken w/ 1/2 a sinemet, It seems to have replaced the 2 sinemets that I was on before.So, maybe 3/4 a scoop is enough to replace 1 and 1/2 sinemet. Anyway, start slow on the mucuna, and you may be surprised how well it works and just how little Sinemet you need - just the 12.5 mg of carbidopa to help cross the brain barrier may be all that we need the 1/2 sinemet for. . Much luck!!!
Barbara,
Please could you tell me when you take Zandopa? before breakfast? when you reduced the dossage of Zandopa the nausea stopped?
thanks
Hi Norton,
You didn't tell me when you were diagnosed, but we are very similar in our symptoms and the amount of sinemet you take w/ what I used to take. One of these days, I will stop the sinemet all together and see what happens. I also have other forms of MP besides Zandopa. One is in capsaules, and the other is powder w/o sweetner. I prefer taking these but have not figured out how much to take. (They are both 50% extract). I had ordered a lot of Zandopa when I realized that it was going to take the place of Sinemet - so I have to use the inventory, and also because I didn't want to change anything, while things were working so well.
Here are two other things I do for constipation and for insomnia.
I drink 22 oz. of filtered water when I first wake up and all at once. Eat breakfast after 45 min. have passed. No more cdnstipation. For insomnia, I make some marijuana tea at bedtime. No more waking up too early, night terrors, acting out my dreams, and wake feeling great.
Supplements: I take coq10 and something called astaxanthin .
Anyway, I love hearing that you are going to start experimenting - these are all harmless natural substances w/o the sideeffects we are sick of enduring. No one else is going to be able to help us even when they want to, only we ourselves..........while we still can. Hope you'll stay in contact w/ your results. good luck.
-Barbara
allnatural, You sound like someone who is well informed about taking Zandopa. I'd appreciate any help you can give me. I ask the same question on the site. I've had PD for almost 15 years and I've only been on Mirapex and Amantadine. Do you think that Zandopa would need to be taken with carbidopa to be effective? Do you know if the m pruriens is the same thing as Zandopa? What is the best way to take it, powder or capsule? Where is the best place to order it. My Neurologist won't even talk about this subject. Do you know any web site that can educate me on the interaction of prescription drugs and alternative medications? I'm sorry to be asking so many questions. I'm just desperate for some answers. Thanks.
Hello Allnatural again,
Re:reading this post I am interested in the other powdered form of MP that you bought at 50% strength. May I ask where you got it from and what damage you would use compared with Zandopa. Incidentally the Shaman capsules at 50% strength are out of stack so I will be looking for another source.
Regards
Norton
Hi - the one other MP product I ordered was from:
global-supplements.com/l-do...
It's not in capsules like I wanted - but the powder doesn't have sugar in it and it's more pleasant to taste - for me - tastes like unsweetened ice tea. Don't know the exact dosage to take for me - I think it's 2 of those little scoops. Haven't gotten into it - just keeping it on hand - I have too much Zandopa to go through. Ordered a lot because I live in Medellin, and sometimes, I have to go to the post office to pay a little tax - sometimes it comes directly to the house. Too bada the Shaman is out of stock - I take 3 of those w/ 1/2 Sinemet when I am not at home. Can't seem to get along w/o the 1/2 Sinemet , tho. AFter 2 hrs. I need something - but have been busy and have not given it a good try. But I figure 11/2 or 2 Sinemets a day is so much better than what I was doing before. Sure hope the mucuna keeps working for many years. One warning for the Zandopa is that when I took the full red scoop - I would get naseaus and would have to vomit it out. So, I take slightly less than the whole scoop. May have gotten used to it by now, though. It's been 6 mos. and along w/ more exercise - I do feel much better everyday. Good luck, Norton.
Thank you again Allnatural for sharing your information and experiences using mucuna pruriens together with sinemet. They are so easy which makes it easy for others to follow if they decide to try your path.
Norton
dear allnatural,
i accidentally found this blog and may be somebody can give me start advice. I know you are loaded with questions from people, but i was diagnosed with Parkinson symptoms in august 2010 at 49, having almost 5-years old daughter, frightened and shocked like everybody else I am sure, was prescribed azilect, which doesn't do any difference - how do you take other alternatives? just doing your own research or you discuss it with some doctors? sorry to bother, i am still lost even i read a lot about this condition, but never met anybody with PD... i appreciate if somebody gives me a couple words, thank you
Hi Viva,
Don't worry about asking me questions - any time - My husband and I are retired - living in Medellin, Colombia, and I have time on my hands. I try to battle this illness by thinking outside the box. I have come to realize how damaging most of all these pharmaceutical drugs are for us. When it comes to chronic illnesses, we would have to take the drugs and put up w/ these side effects for YEARS. Also, realized how effective diet and exercise is for everything! It's why I decided to try the natural road to relief. I have visited 5 neurologists in the last 5 years ( due to changing residence and medical insurance requriements ) - none have heard of this mucuna pruriens. If you read the other blogs on this thread - you'll see some inforamtion about all this. Read the reply I sent to maryalice. I can't really remember how I first heard of MP - maybe on the Parkinson's Recovery Radio website/radio show. Let me know if you can't find the information given out before and I can email you individually if you like. It would be especially nice if you can find relief before years of taking the traditional l-dopa drugs given out by doctors..I took them for 10 years and hada to increase over the years. None of those are cures anyway. I found much less side effects on the MP. I'm sorry that you were diagnosed so early in your life. Hope you'll take the diagnosis as a warning sign ( really quite a shock I know ) to take charge of your own health from now on, and fight like hell w// diet and exercises. You have to go beyond what the drs. tell you. It will do wonders for your future. Hope you'll take my advice as if it came from a big sister and not from some stranger lecturing you. ha ha ha......I always let my dr. know what I'm doing. The last few neurologists are all for my taking the MP - they've used MP in India for only 4 thousand years + !!!!!
.
dear allnatural,
thank you for your answer - you inspired me so much - I told my husband this morning that i am starting new page: you assured me that i am almost on the right track. i rejected to take other drugs to 3 neurologists, chose totally healthy diet, supplements and hopefully exercises (my child is 7 now - it is a bit easier to find time now!) Finally I force myself to find other people (you are the first one!) with these symptoms and it looks optimistic. I will go to the website you suggested. I also found good chiropractor - nutritionist, who is trying to help. What is interesting: since i constantly have trouble to keep my vitamin D level normal, he asked me to take at least for a week 50,000/day (!) of vitamin D with (!) 160mcg/5x per day of K-2. I am on skeptical side on this....but I actually think today (i finished this dose a week ago, now just 5,000 of D a day) - i feel a little bit better. It may be just a coincidence, who knows? I decided to share it with you. Of course, people cannot do this without consulting specialists. if you will have chance, may be you can say, what are the supplements you are taking? I also been taking 1200 of ubiquinol for about a year or less, but did not find any improvement and it is expansive too from the trusted sources. thank you again, have a wonderful days. viva
Hi Viva,
I am so happy I was able to inspire you. This really makes my day. I will be thinking about you and your new chapter starting today. It is time to help yourself and treat and think of yourself as important a person as the rest of your family. As women, especially as a mom, sometimes it's easy to forget to do that. That's why I think of Parkinson's as a "in your face" reminder to take charge of my health - and not rely on anyone else if possible. On the label of Zandopa - which is the Mucuna powder from India that I take - one of the instructions is to do your tasks yourself - even if it takes longer. The biggest challenge I face is exercise. But I now have a different way to think about that. I take each task and conciously make the effort to do it and think of it as a form of exercise. Like bending my knees more and "exercising" in the kitchen. Running errands, or just plain running around for your 7 yr. old - When I think of each chore and task as exercise adn that it's going to make me feel better - it's easier to get it done if I think of it all as "good therapy". I'm working on meditation. Something else that's difficult for me. I know qi gong, taught to me by my mom. I'm an artist and even tho I know it's good to keep it up - like qigong - it's a challenge to feel like doing it. I need to just attack it whether I FEEL like it or not. It's all vicious cycle, isnt' it? Luckily the weather here is such that I can do water aeroabics in the pool all year round. As for supplements, there's so much info out there, and the reaction of certain supplements between them and certain drugs that I'm going to have to rely on a nutritionist. Hopefully the acupuncturist I go to today can help. Right now I am taking 2 anti-oxidents - COQ10 and Astaxantin. Have added magnesium recently. /but they are expensive. Trying hard to eat the right things instead - a ton of veggies and fruits. Good Luck Viva!! Viva Viva! I admire your determination.
Dear allnatural, certainly, I am lucky to find you in the blog - I feel the same doing everyday tasks - trying to think it is my exercise, forcing myself to do everything without help. My friend gave me qigong cds -i'll do that too. I am from Siberia, Russia, my mom is pretty healthy 85-y.o., my dad is pretty healthy 88 y.o - sad, that we cannot be just like them, isn't it? i am an architect, so kind of similar to an artist. I'd like to keep in touch with you, I hope you don't mind. thank you for your conversations, please stay on top and keep in touch! viva
I meant to tell you that my oldest daughter was told that she had almost no Vit. D in her body - the doctor had never seen anyone w/ such a small level and put her on supplements right away. I think it's important to see a nutritionist and get tested on what our bodies are lacking. The acupuncturist here told me to take Magnesium chloride mixed w/ a little sea salt. It has made my sleep better, and helps me to go to sleep because it relaxes my muscles. I also have to drink more water throughout the day. Sometimes it doesn't take much to feel better. Hope you are staying warm in Siberia!!! My goodness!!
dear allnatural, thank you for your wishes to stay warm - fortunately, i live in US for more than 15 years. fortunately because i am sure my condition would be much worth if i'd still live in russia. but here, in Midwest where i am now - we have about 2 feet of snow today and it is like in Siberia. you have mentioned before that magnesium is expensive (where you live probably). i use the website vitacost.com, have you heard of it? my friend who works for FDA gave me the link of trusted supplement sites and vitacost is one of them. i thought to mention it to you. i also take magnesium to sleep better.
thanks, viva. I meant that supplements are expensive, such as coq10....I use the magnesium powder here, which is very inexpensive. Yes, I use Vitacost also but I use Puritan's Pride for Coq10 - it's cheaper, and I think the co. is a good one. I hope so, anyway. It's exhausting trying to make sure co.s can be trusted. We are at their mercy. I'm glad you are living in the US now. But, you have to make sure you don't buy any processed foods - I worry about my grandkids and the sugars,e tc. they consume. I also now use coconut oil (pure, virgen) to cook with and instead of butter. No milk, no sugar and no coffee, if I can help myself. It's hard.
thank, dear allnatural, i'll check that website. i also heard that Ubiquinol is the reduced form of CoQ10 that serves as an antioxidant. Both are organic vitamin-like substances. Ubiquinol, unlike CoQ10, does not require vitamin E to function as an antioxidant. do you need to take vit. E with CoQ10? We also do not keep any processed food at home, which is extremely hard when you have 7 y. o. around. we try to do our best though! whole foods and home cooking. i found myself liking the simplest food recepies, probably because cooking is becoming challenging now!
Hello...can you tell me how to or how much magnesium chloride and sea salt to take? Do u mix them together? Thank you.
Dear "Hidden", I've been reading your posts of 3 or so years ago. I loved reading them - you're so positive and hopeful. I'm wondering if you are still on-line. If so, I'd love to know how you are doing now. Are you still taking MP? How is it working? Is there any wisdom you've gleaned over the past 3 years that you can share? Thank you.
Just curious Viva, are you not concerned about supplements coming out of India as they usually contain many heavy metals in them? Is there any other brands here in US you can recommend ?
Hi im 66. Have a bad hand tremor.neuro never has come right out and said u have pd but try treating me with sinemet which i refused. I have never taken prescription drugs before but i gave in and tried the admantedine she prescribed. For two months and ankles started swelling..just a little but it was enough for me. I stopped it . not , bruptly.now i have zandopa .87% mucuna prurients. It saids to take 7.5 g. I donot know how much that is.could you possibly tell me?
Hi,
could you tell me when to take Zandopa powder? before or after breakfast?
thanks a lot
I also have leukemia, and the worldwide Leukemia and Lymphoma Society matches interested people -- especially the newly diagnosed -- with folks who have been at it for a while, can answer questions, offer tips, point people to resources and support services, etc. Is there a Parkinson association that does something similar, does anyone know?
What is marijuana tea? Using real marijuana?
Hi Mary Alice,
Here is a website that explains how, when, what and why mucuna pruries came about in the treatment for parkinson's.
iocob.nl/english-articles/m...
If you google mucuna pruriens, you'll get plenty of information from people who have taken it for a much longer period than I have. I will try to help if you have more questions about what I'm doing - there's an answer for you if you keep trying, digging, experimenting and don't believe that there's no hope.
Zandopa is a brand of MP. It is in powder form. It's not approved by FDA - not that big a surprise. But they can ship it to you as a supplement. Unfortunately, this company n India does not have MP in capsules. But if taken with juice, it's not bad. I wish they didn't have the sugar in it. Anyway, it's a good incentive for me to keep juicing w/ veggies and fruits adn have it always ready for the powder. You only need a little juice to add to the diluted powder.
This is where I purchase Zandopa from:
mall.coimbatore.com/bnh/zan...
Other than this, I try to keep myself from getting panicky about the future, take daily walks, do qi gong (I'm Chinese, my mom who is almost 90, taught me ), a little yoga for some quiet time alone, and am grateful for the Zandopa. Someone I read about, takes a little sinemet w/ the MP so when I cut it way down, I kept 1/2 pill to take w/ MP at each dose. But, I've also read, since then, that it's not necessary to keep the carbidopa, because MP has something in it that also helps with the absorption and crossing into the brain. So, I'm going to try to get off Sinemet all together.
Good luck, Mary Alice, take it easy and slow, and you'll find out how best to help yourself - since we are all so different. That's why doctors can't really help, other than give you an official diagnosis and prescribed FDA approved chemicals and/or surgery. In my humble opinion, I think we got poisoned along the way, and must now try to regain our health by eating carefully and exercising our bodies and our brains - which is what we all have to do anyway in order to have quality time with ourselves and loved ones. If I look at Parkinson's as a wake up call blessing to take better care of myself from now on, it makes me feel a little better.
Thank you so much for such clear information. You don't know how much I appreciate it. I'm going to check out the sites you gave me. I'm so excited.
Thanks Allnatural for all the information and optimism shared. My aunt is not on any Parkinson drug yet. I want to experiment with mucuna pruriens. Her consultant say he knows nothing about alternative treatment. I desire to have a full understand of likely fall outs of the experiment before I start. I have bought a bottle of Velvet beans caps with each containing 15% L-Dopa i. e. 120mg.
My Questions:
1. What are the likely consequences of using the capsule alone without any other Parkinson drug?
2. Is 120mg safe to begin considering that on and off moments have not set in yet?
3. Are there precautions we must take? Against what?
Your advice on the above and generally as may be of use will be eternally appreciated. Thanks all.
iocob.nl/category/ziekten/z...
iocob.nl/2009/03/mucuna_pru...
There are a number of very important questions which we would like to see answered on the Forum. Those answers are immediately for all transparent, so that everyone can learn from each other directly. Where appropriate, IOCOB comment.
How many years are there clear symptoms of Parkinson's disease?
How many and which regular medication for Parkinson's disease was taken before with Mucuna Pruriens was started?
What is the reason to use Mucuna Pruriens to want to go?
How many weeks is Mucuna Pruriens used and on what daily dose are you on? Please specify, if for example I use a total of 30 grams of Mucuna Pruriens, Zandopa per day, in 6 gifts per day by 5 grams.
What mainstream anti-Parkinson medication is taken, and how much of it is taken up now Mucuna pruriens is also used?
I am caregiver to an illiterate woman in her 70s. The problem started with night time urinary incontinence. When all possible treatment failed, she was referred to a neurologist who diagnosed Parkinsons. By then, fine tremor was becoming noticeable in one of the arms. Before then, the arthritis of the knee which she had mad us put walking difficulties to that arthritis which has given her a k-leg.
She was placed on some drugs but the reactions were so bad that she had to discontinue. It was like the drugs accelerated her symptoms. Although she had suffered TIA before, she soon suffered another one. Every little exertion causes her to become moody and weak. Sometimes she hallucinates.
I came across velvet beans and ordered a bottle of its capsule from herbal healer. Each cap is said to contain 120mg of L-dopa. I have just asked from the neutologist if it is ok for her to take it. He said he know nothing about alternative treatment. Right now, she is not on any Parkinsons drug. She takes mostly supplements. I desire that she starts on velvet beans caps but I am worried about the 120mg of L-dopa in the capsule. Is it not too much? I want to draw from the experience of those who had taken it before. I mean L-Dopa derived from velvet beans.
Please help me if you have any experience along this line.
My fiancée is going to start Zandopa tomorrow, and we're both excited and nervous. She's currently taking a half a pill of Sinemet every hour, so that's about eight pills a day. She also takes Entacapone in the morning, afternoon, and before bed along with her CR before bed. We just really hope this will cut down on the amount of Sinemet she's taking, because the side effects are terrible and she's very fearful of the long term effects. She's only twenty-six and has already been on Sinemet for 10 years.
If anyone can give any input about dosage, it'd be really helpful. I've read through the thread. There's so much great information that has her very excited about the Zandopa. Thank you all.
Mucuna is a form of dopamine and has helped many. I take Zandopa powder and Kapikachhu Capsules with 1/2 sinemet twice a day. I feel much better taking it with sinemet vs. taking sinemet alone without it. I bought it online, directly from India from an ayurvedic web store. They shipped it via express delivery which took less than a week to get here in the USA. Here is the link to their web page if anyone is interested -
ayurvedabay.com/zandu-zando...
ayurvedabay.com/kapikachhu-...
Hi. Are you still taking the zandopa powder and capsules? How much powder do you take and how many capsules? Thank you!
I take zandopa along with sinnemat. I take zandopa one spoon 🥄 supplied with the powder which is 7.5gms and it helps me to be active for 3/4 hrs, it I only take when I need it
Hi. Are you still taking zandopa? Have you changed your dose? Thanks so much!
Any PWP with good results with high dose thiamine ?
Azilect anyone taking it any problems?
Is anyone else taking rhodiola rosea?
