Life as a Balloon

I feel like a Balloon the times my meds are working I feel like an inflated Balloon. When my meds stop or don't work I feel like a deflated Balloon.

[Court]

When my meds are working, which does not always happen on a regular basis, I feel almost 'normal'. The last couple of days have been good ones, but have a feeling that today the tide has changed.

[pen1]

Brilliant description! And it's not just physical. When they're working i feel like a capable, confident human being. When they wear off I feel there's no point in trying to keep going.How can we make sensible life decisions in such a ridiculously fluctuating feelings? And no one - apart from other PwP- has the slightest idea of what I'm dealing with or what effort it takes to keep going. I am sick of people thinking PD simply means you shake a bit. I find my self longing to find a (short acting!!) substance I could give people that would whisk up their brain chemistry to the shambles ours is in so they could expereince a few hours of what we have to deal with day in and day out. You can probably tell I'm having a ranting day - blame my neurotransmitters!

[Melodysam1890 in reply to pen1]

So true! It isn't only physical - it's emotional, mental, and definitely a roller-coaster ... I love and enjoy the good days - the other days I just wish I could sleep thru ...

[Hidden in reply to pen1]

Thank you

[PatV]

Yeah. Designer disease! It hits my ab and everything gets stuck. Very embarassing to have and explain! If the drugs are not absorbed forget about it!

[tejas21]

I share everyones feelings here but come on guys a bit of positive thinking goes a long way in coping. And I speak from 21 yrs of having PD

[larry33b in reply to tejas21]

I agree with tejas21. Smile a little more.

[chrismw]

positive schmasative!! This is your place to rant!! If you can't yell about your pd demon here, where the heck can you? Rant on! I'll listen!

[Hidden in reply to chrismw]

Thank You

[lmbanni]

I also thought your discription was great Anthony!! My husband says he feels almost normal too when his meds are working and only maybe 3 times he has had Glorious days where he says he feels really normal!!!! Oh how I wish those days were more often!!!! We have been married a looooong time and I remember how my husband was....... those were wonderful days!!!! We miss them!!! Of course we are happy to still be together but we both had such wonderful dreams of him retiring and still able to work from home to get extra money. Those dreams are gone. We also wanted to travel.... those dreams are gone.... we bought a travel trailer the Christmas before he got sick in January and that is gone..... He has just turned 62 this year. He was 54 when he got PD. He says his life is gone..... I tell him THAT life is gone but now a new one is here..... we will still be together and make this life as good as we can!!!! May God make us all have the strength to make it as good as we can Anthony!!!

Vent any time you need to!!! We all do!!! I hope you are having a good day today!!!

[Hidden in reply to lmbanni]

Thank you he's a lucky man to have you , My wife of 19 yrs divorced me this year . I too LOST everything because of PD.

[Hidden in reply to Hidden]

I pray and hope new meds or some cure comes soon .

[lmbanni]

I'm very sorry. People sometimes think they can handle anything when first married and sadly when things get really hard they learn that they can't. We have had hard times too. It is not easy by no means for us.

Thank you for the compliment. We have been married 36 years.

[gran5-]

Remember that we/i are/am venting!! It's about the tough stuff, who's going to sit at the keyboard and spend time talking about good stuff. wait a minute what a good idea. For alll my griping I'm going to spend some time on the good stuff!!!

Sunday I got 2 beautiful floral arrangements and a bunch of phone calls and one Skype visit! I'm having a bad spot so I'm signing off here going to find my iPad and continue visiting on it while lying down. (Some one want to peel me a grape or 2? Watch for my latest blog topic: Glutithione.