This video was take 3 weeks ago
Al
A bad night with Parkie: This video was... - Cure Parkinson's
A bad night with Parkie
34 Replies
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hiAl
was tihis taken b4 your break in GranCanaria ?
it si v difficult to watch but good that you made the video
Lol Jill
Hi Jill,
Yes it was , thats not the worst i have been, however laraine is starting to record these episods so that we can get an overall view of how iam doing over the nnext few months, i know its hard to watch but i felt it had to be shown, just to let us all know we parkies are not alone out there,
love
Al
Hi Alan, just shared your video on facebook. Took a lot of guts for you to do this but I'm proud of you. I'm writing this with tears in my eyes. Keep smiling big man, you are a hero
in reply to drew410
hi Drew,
how you doin not heard from you for a while , however i liked the 2 emails you sent me . very funny
talk soon
Al
shasha in reply to
hi al
i saw you video yesterday but could not bring myself to say a thing - you are incredible amd brave and quite sexy too !! Only joking Larraine .....
It made me feel quite emotional but once again highlighted that we are all in this together. You are a proud strong man, well done! xx
Cheer Alison,
i just thought i had to share that , sorry if it upsets any one
how are you doin
Al
in reply to
Al really, it really didn't upset me, just made me emotional how brave you are xxx
in reply to
I am doing ok, but walking is a right pain. Attempted to go shopping to a designer outlet centre today (Bicester) previously I would have been round those shops like a whippet believe me, but my daughter had to leave me seated on benches every 10 mins - having said that, I still managed to bag a few bargains and let go of a few pounds lol. Just got to get on with it :)) xx
in reply to
Cool, i love to shed a few pounds myself, one of my fav pass times is spending
its 4.30 am sunday and i am wide awake,going to watch football later
Rangers and celtic , might be the last old firm game if rangers go bust
Take care
Al
Daer all
I am sorry if the video upsets any one, that was not my intention, I posted it for people who donot understand what we have to endure on a daily basis.
i was not even at my worsed that night .
i came back from Holiday last sunday after a much needed brake and i have to say i feel fantastic
Al
in reply to
Glad you had a good time and returned feeling good x
Honestly, Al, this scared the life out of me thinking that I was getting a glimpse into my future. It was hard for me to watch. I wanted so desperately to make it go away for you. I am fairly new at this having been diagnosed not even a year ago. I feel so ashamed because I haven't endured what you are going through; but have had days that I have cried like a baby over this. Please don't apologize, people need to know. I, too, was ignorant about PD until it happened to me. I never knew........now I do.
Happy to hear you are feeling better.
Take care and thanks again,
Cheri
Hi Cheri,
i did not mean to scare anyone, today iam having a good day , i will be going to my local pub to meet some friends and have a beer or two
Al
I hope you have more good days than bad. That's what I want for all of us. Enjoy your day out!
Thank you for posting this Al. I have been there but am now in pretty good shape. Scares me to know I'm likely to see some bad nights again and don't know when.
Have a ha'pint for me!
How brave to make, never mind let us see this video of what life can be like for you. You are obviously a very strong person and blessed to have such a caring wife to be with you.
I found this video upsetting, but not frightening as I had a relative who was very similar to you and she had 20+ very fulfilling years and she never gave in. You are an inspiration to us all. Stay strong.
Think you deserve a couple of beers.
i watched and you are an amazing man . ive only be a dn since jan and have been advised as my sympyoms are very mild not to go to support groups. but now i think i want to know what i might face, i intend to do all i can to keep this at bay as long as i can, doing the 10k in glasgow with friends, sleeping seems to be my main problem. along with tremours left side. i get up around 3/4 and ( dont laugh) knit or cross stitch ( my addictions).but then at work during the day im so exhusted i feel ill. trip to docs i think may be on the cards, no more mrs nice gal.... sounds like you also have loving support,
thank you
in reply to mitchdee
Thanks,
When are you doing the 10k ? are you doing it for a charity ?if so let me know and i send down some sponsoship money, as for my self i have difficulty doing 10yards HA HA
Al
mitchdee in reply to
its the 13may and we are doing it for parkinsons uk.. we are only walking but its a start.... my sister does not think im up to it, says i couldnt do 10k before i had pd what makes me think i can o it now lol... but im determinded, might even run it next year lol like someone on this site said the first day i joined, they have pd it does not have them.i know im in the very early stages and with luck who knows,,
in reply to mitchdee
Fantastic, tell your sis to feck off we PDs can do what ever we want , you see we are special , this is a private club and not everyone is allowd in, where does it start from , the 10k?and ill come along to give support have you got some sponsors?
Al
Why not try a support group for younger people with Parkinson's? We have one in Cornwall and most of the people who come along would worry about going into a room with older people but mix with people with all sorts of symptoms over a pint in the pub where we meet.
Parkinson's UK website might be your first port of call for finding one.
Sue
Nice house
in reply to
Thanks
Al, my husband has not reached this point yet and hopefully he will not. He has had PD for 8 yrs now. I am also very touched by your strength and your wives strength as well. May God Bless you both always!! Thank you for posting this video. I needed to see what we may be dealing with in our future. My husband can not view this nor does he want to see anyone with PD who is worse than him. It scares me that he still feels this way after so much time has passed. I think he still can not accept it all. One day at a time is what we do.
Anyway thank you again and God Bless you!!
Mary
Thanks for your kind words Mary,
I am not always like that just now and again and i lasts for a few hrs or more, so its not that bad,
I have more good days than bad , so i just get on with it the best i can, my wife Laraine is very supportive and is a great help
take care
Al
Hi Al, many thanks for allowing us to share your struggle, it is very brave thing to do. For me it serves as a reality check, I was diagnosed 2009, decline, thankfully has not been too bad, just increasing tremor. Can I ask when you were diagnosed ?
Delighted to see you went on holiday & enjoyed it, heres to many more.
regards
Hamish
Hi Hamish DX in 2011, however i was being treated for a stroke untill i was admited to glasgow Royal stroke unit and had the chance to meet a Prof Stott, who dissmissed the stroke and told me i had Parkinson's , later on i had a DAT scan and this was conslusive , i have been going down hill at a rapid rate of knots, but will not let the beast take over
Al
Hi Alan. Watched the video. Not shocked as I have witnessed PD before although lucky enough not to have experienced it. Made me thoughtful and aware that in many ways, you have not changed. A good thing. x
Thanks Fiona,
How are you both doing, we need to come up for a wee visit, am away next week but hope to see ypu both soon
Al
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