I have recently completed my results after completing the above Survey and wonder what opinions other people have about their results. They take a long time to assimilate and I am still trying to figure the information out.
They have given me a list of relatives on the trial and asked me if I wanted to contact any. 5 have been in touch with mebut all live in America or Canada. I am not quite sure if they all have Parkinsons. Incidentally, I showed up as being in the low risk category of developing Parkinsons! Thank goodness I was not in the high risk.
A lot of the information regarding genes if hard for me to understand, but will get there in the end, I hope.
Written by
Court
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Sue, The return is in on the saliva sample and I have the surveys 74% comleted, have been lagging on those. They notified me of three "cousins" in Norway that I wasn't aware of.
Was thrilled to hear that you are "low risk" for Parkinson's.
Dumb Question-------Why is the program called 23and me in some places and 23andwe in others?
I believe the program will be rather entertaining as well as informational.
Not sure whether low risk is good, as I already have Parkinsons!! Can't understand this at all. Don't know why it is called Me or We, but then again I am having trouble getting to grips with the results. Sure it will prove entertaining and informative if only I could understand it.
No it was not confusing. My comments were also made tongue in cheek. As far as I know. although two cousins had Parkinsons neither came as a direct link to me, their link being from their parent who was not a blood relative to me. If you see what mean.!! Am not sure if all the relatives they found have Parkinsons or not.
There is a site for 23andMe which can be easily accessed by typing in 23etc and googling.
It is not done through your Dr. If you live in the UK and have Parkinsons it is free even postage. Think there is a payment if not in the UK. Just a lot of questions to answer and a request for a saliva test to be sent to you. This takes about 6/8 weeks for results to be sent, then it is up to you to decipher them. Worth it, I think.
HI JOSS - JUTS FOLLOW THE INSTRUCTIONS FROM COURT AND THEN YOU SEND IT OFF - I THINK I GOT AN EMAIL FROM MJF FONDATION ASKING IF I WANTED TO TAKE PART - THEY NEED 10,000 PARTICIPANTS AND ARE UP TO ABOUT 8.000 -0 i live in france AND IT WAS FREE me TOO EVEN SENT dhl to collect the sample as we are in the sticks and dont have a DHL CENTRE NEAR US
I had a box on my results locked but was not really anything when I unlocked it. Have not got as far as chromosones yet as I am just taking things slowly. Found relatives I did not know about, but third cousins plus so have not made contact yet. It is all too much for me to digest all at once.
Well. it took me ages to figure it out so was a bit confused.com. Think I clicked on the locked box, read the information given and then was asked if I wanted to unlock the box, which I did by clicking.Hope this works as it took me a few tries before I figured it out.
Thanks for the info. As you can tell, my computer skills are limited! I will try again. Thanks to all on this site for all of the great information that you post. It has made me feel like I am not alone in the crazy world of P.D.
I have done this too and have my results. However, I am SO confused with all the info. Hope I will be able to figure it out somehow. Any suggestions to simplify it?
I to have done this, and I feel the information can be confusing. Although, I will say this, it did pickup all of my other ilnesses. The DNA research also found a DNA marker that suggests I am at a high risk for devleoping Parkinson's. This marker also shows it to be a familial mutuation. Since I am the 5th person on my father's side of the family, ao I would say the research is right.
I completed it quite some time ago & it showed I was at an elevated risk for Parkinson's. It also picked up that I had a couple of rare markers for early-onset Parkinson's (which is what I have). They wrote a paper about the 2 markers (mine & others) & published it in PLoS Genetics. It also picked up several other diseases I was at elevated risk for & many that I did not carry the gene for.
I too found the information overwhelming. I am still trying to sift through all of it. I do hope that it will be of help to researchers, which is why I sent my sample in.
I just gave my sample to my daughter to mail out of (New York) state but then realized I hadn't registered my test tube on the web site . (duh!) I hope they will sent me another.
morning all 1.17am up again getting tired of being tired but i grin and bear it. Sue thanks u say they test from family what happens if ur adopted.Ill look into it i'm in aus so not sure if that will be ok. but i give it ago
Some questions in the survey ask if you are adopted. Perhaps they would be able to show people sharing your genes that you did not know about. At any rate, they would probably be able to give you the health results.
At least you understand some of it! I am confused as to whether all these new found relatives all have Parkinsons and also why none of them seem to live in the UK. However, I am working my way through the results and, as you say. info is info.
One of the things that differ with my PD is that I know with out a doubt how I contracted PD I serve two tours in VN 1970-71 and came in contact with AGENT ORANGE Doesn't help but at least I know how and why I have it
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