Update

[Flipper_B]

Just want to update everyone who follows my case.

Now, 6 weeks after stopping my 12-week Tanganil cure , I still haven’t had one single event with RBD; no nightmares, kicking or screaming or talking while sleeping. Possibly one or two very mild twitches from my feet in all 6 weeks but I never woke up. More like RLS.

I now cut down my melatonin dose from 4 to 2 mg.

Also, I got an appointment with the neurologists at a university hospital in Sweden for two days in April. They will scan my brain, do different tests and also make a sleep study (polysomnography). It is a research study for 6 years to follow iRBD-diagnosed patients and they will scan the brain once a year.

My grandmother died of PD, also one of my uncles. Now I learnt that one of my brothers also has iRBD. So there is certainly a genetic factor in my case.

[MarionP]

👍👍👍💪💪💪

[popo1]

very good report, thank you for posting and continued success on your journey.👍😀

[Ghmac]

what is the 12-week Tanganil cure?

[Flipper_B in reply to Ghmac]

Please see my previous posts and you can read about it. I started with Tanganil in October and stopped in the beginning of January.

[Ghmac in reply to Flipper_B]

I did eventually come across it in my email feed. I assume you do not live in the US? Thank you for your reply.

[Flipper_B in reply to Ghmac]

No, I live in Spain and Sweden and travel between, so I pass France often by train and am able to stop and buy Tanganil in France over the counter.

[Despe]

Tanganil (brand name) is no longer available in France, only the generic form (my mind escapes its name). Would the generic work the same as the brand name? Were you taking the brand name? Thank you!

[Flipper_B in reply to Despe]

It isn’t? That must have happened very recently. I have bought both Tanganil and generic versions of other brands. Generally there shouldn’t be a large difference between these. In December I bought the last time but I am not sure if it was Tanganil or generic versions, I bought in October also, I have both in store for myself now.

[Despe in reply to Flipper_B]

Thank you.

[Zico10]

Thanks so much for keeping us informed! Very happy to hear of your improvements!