Fighting PD - head on or guerrilla tactics

[blazyb]

fightingparkinsonss.com/202...

Interesting in your thoughts on this changed approach

[JayPwP]

Good one... Thank you 🙏

[blazyb]

I really like that. We each have to find our way and I hear you truly

[india245]

Beautiful response. I too struggle with fighting language and the warrior mentality.

I do have days when I feel like I am fighting, but they never feel good. I just end up exhausted and upset. And what we resist persists, right?

for me, PD is very much about learning to love myself more, not fight myself.

. But I completely respect everyone’s model of the world. If fighting works, then go for it. We are all walking the same journey, but we each take a different path. As long as we all meet at the Summit in full health, then it doesn’t really matter how we get there… Just as long as we get there.

[Nikkiheat2]

I don't relate to the fighting analogy either. Our MO has been more of a methodical / programming approach. Test, adjust, retest. Repeat until cured. We've been using a similar approach to the Dale Breseden protocol for Alzheimer's. My husband has been doing regular labs, plus functional medicine tests we've ordered on our own, including microbiome testing. He probably had 30 or more of the tests with out-of-range results, so we've had a lot to work with. After several years in, I'd say his tremors are currently 35% better now than his low point. Not sure if this is a permanent reversal yet, but we're optimistic.

[Fricnfrac1999 in reply to Nikkiheat2]

My hwp has a functional/holistic doctor down in Florida. He orders him all kinds of tests too. That's nice that you know what to get on your own. The doctor had him do toxin tests, microbiome/gut tests, Ptau, etc. My husband has so many markers out of range as well. ....It's crazy to think of how all that affects a person and it will keep you up day and night trying to figure out just what's causing the Parkinson's!

You said that years later he is better. Can you advise on some top things he has done to actually help? My husband's main problems are gait, balance, and left side weakness.

[Nikkiheat2 in reply to Fricnfrac1999]

Fricnfrac - I screwed up and replied to the main thread instead of your question, but you can still see my reply below.

[Nikkiheat2]

I'm happy to share what has helped him, but I'm also pretty convinced that, like the Breseden studies on AD, each person likely has a set of unique issues and solutions. His main symptoms are mostly tremors on one side. What has helped him has been keeping track of what he eats in a day in a free nutrition tracking site. I noticed he was consistently not getting enough magnesium and potassium, which help retain water, and on urine tests he was frequently dehydrated. I adjusted what I cook to try to serve more potassium and magnesium rich foods. I also track what meals seem to calm his tremor and what meals seemed to make him worse. We've just started eating the tremor calming meals almost exclusively.

Some specific foods that seem to help are prune juice, blueberries, home made apple and strawberry sauce, and jujube dates. There are studies for most of these on being beneficial for PD, plus they tend to fix at least some of his out of range labs tests. Like he had issues with hippuric acid, and most of these foods can help increase HA.