My HWP has strong tremors in his right hand, is stiff and weak, and has bad apathy. Since he taught electronics, I thought making the gloves would be a fun project for him, but he is now unable to do it. (I had thought of getting the parts and trying myself, thinking when he saw me doing it all wrong he would be disgusted and take over! But my health problems prevented that.) Our engineer daughter was here and saw how much he has regressed. I showed her the gloves and she is gathering materials to make them. She is working on her PhD so I am grateful she wants to take the time. She is also 3D printing some things to help with buttons and seatbelts. Needless to say I am encouraged--this has been a lonely road.
Now she is asking if she should just make a lapboard with a stretchy band across it first since putting on gloves would be hard for him. Seems it would be hard to keep his shaky hand in place. I have never read any discussions here about only using a board. I know very little about how the gloves work. Would this be a good idea? Any advice appreciated!
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tiredpuppy
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Just do it and see. Put yourself into the present not the future. (It's actually rather important psychology trick... We often torture ourselves by flipping into the future or the past... But really, the way to look at it is if the future is a problem, you'll get there in time to deal with it in the present, rather than torturing yourself twice, now as a speculation in the future and then once the future already arrives and then it's in the now.. you end up torturing yourself twice. Stick to the present it's a good habit to catch. The future isn't written yet so why hurt yourself over what amounts to speculation and addiction to stimulation over speculation. And the way you do that is catch yourself jumping out of the present into the future to worry about that.. believe me, you have plenty enough keeping you busy in the present. Try to catch yourself jumping off into the future, which hasn't happened yet, and draw yourself back into the present. You will feel so much better and nothing will change as a result. God bless.
there is some good information on home-made gloves on a YouTube channel called living with Parkinson’s. I think the guy is called Dave (but don’t quote me on that). In the end he made five prototypes, I don’t think they worked for him, but you will get lots of ideas and learn from his mistakes. In his description he also links to a YouTube channel which is all about making these I think – I didn’t get that far in my research yet.
I made them for my husband and didn’t make a board, but he doesn’t have a tremor. I think gloves might work better but he might need some help to get them on. I agree with you that a tremor might be problematic with a board.
you don't need permission to do what is necessary. you daughter must be intuitive, it won't hurt or cost much, try it.
i have been building one for awhile too but it is very difficult for me. i believe, from my experiments using an ems device, on key acupuncture spots, that the glove will work.
I built the buzz board first because I wanted to test the technology without going through the challenges of working through the glove mechanics. It was a great place to start for my wife. That being said, I have built a board for a friend of the family that had trouble keeping his fingers in place due to tremor. I replaced it with a set of gloves which gave him good relief. Others have built a board, but rather than attaching the motors to the board, left them free and connected them to fingers with elastic or Velcro. You would probably want to attach the wires to the board for some strain relief. This has worked well and was a short cut to relief for some.
Eventually, you'll likely want to build some gloves as they allow more freedom of movement. My wife wears the archery gloves while she works (computer work). She does occasionally pop an index finger out of the gloves for finer motions. We have had great results from the technology. This January 1st will be 2 years.
I was diagnosed with Parkinson's in 2023 and a friend with PD was using a pd buzzboard with good results, so I went to pd buzzboard site and built 2 sets of gloves. I find it helps with rigidity and tremor in left arm and puts me into a very relaxed state, actually puts me to sleep sometimes. A friend I gave other set too didn't get the same benefit, it made his symptoms worse. We all react differently to therapy. I also use redwell light helmet twice a day which also helps with slowness and tremor in left hand. Also use Symbyx 904 laser on gut. My neurologist has been supportive of me using alternate therapy devices along with one Levadopa CR 200/50mg at 7 am & 7pm. All these treatments are keeping the symptoms in check so far. Never give up!
it's worth bearing in mind Dr Peter Tass advice on this. I paraphrase slightly
"Don't make DIY gloves. They could make things worse"
to be fair he may also be saying "don't make DIY gloves. I have to say that to avoid being sued if I say it's OK and you screw up something."
To answer your specifics
Gloves. Not a board. Gloves are restrictive for 2 hours at a time. A board? draw 8 dots with a felt pen on a piece of paper, put it on the table, keep 4 fingers of both hands still on the dots for 2 hours and answer your own question
2 gloves , not one (long story)
there are many generous sincere helpful people advising about gloves whilst failing to understand the science and maths behind vCR. And vCR is still evolving and learning. if you are going to ignore Peter Tass advice and build DIY gloves (like I did) I would copy every detail of his gloves as closely as possible (like I did**)
Put another way "if you want results like Kanwar Bhutani use gloves like Kanwar Bhutanis!) ( #ksbhutani12 )
** I have been helped with various aspects by 4 friends with degrees in physics and maths
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