Newly diagnosed....a question?

[Grammy80]

Does PD make the soles of your feet painful to step on? Tylenol, or Paracetamol to my UK friends, does not seem to help; stretching does a bit. Any tips are appreciated...💞

[Boscoejean]

Parkinson's can cause foot pain

cadense.com/blogs/cadense-c....

[Grammy80 in reply to Boscoejean]

Really appreciate this, thanks!💞

[Purplecrow]

hi, GRAMMY, having been born in Oklahoma USA, I am a barefoot woman since birth. As I’ve aged, I noticed my feet are often painful when I walk without shoes. After having carpeting removed from my home floors, I’ve begun wearing slippers most of the time in the house, seems to help.

(Ps, I now live in Washington state, beautiful Pacific Northwest USA.)

[park_bear]

Pain is usually the result of dystonia - tight muscles. For bottom of foot pain consider toe stretches and walking barefoot. Parkinson's medication can also help.

[fnedorez70]

Do you get magnesium supplements? These can help dystonia. There are many different types and you can talk to your nutritionist or doctor about them

[Grammy80]

💞Thanks to all..I checked and magnesium is not on 'my list'.....it will be!!

[Smokeypurple in reply to Grammy80]

There are lots of different types of Magnesium (like citrate, L-threonate etc). I'm looking into interactions with levadopa, or carbidopa after someone suggested it may be interacting with my night time CR tablet and making it act differently.

[Grammy80 in reply to Smokeypurple]

There is no end to what I have to learn....💞

[crewmanwhite]

If the pain is burning, sharp, "electric shocks" or like glass, it may indicate a Bartonella infection. Worth checking. Easily treated with herbs from Byron White Formulas in USA.

[DogsWoode]

there was an article in here somewhere about these sandals that really helped foot pain for PD. might scroll around and see if you can find it. special knobby bottoms to help massage the foot.

[HugoRipanykhazov in reply to DogsWoode]

Those sandals were only supposed to alleviate the one-inch-shuffle. I don't think anyone suggested that they did anything for pain

[RBan]

sharp pains on the bottom of your feet while walking could be neuropathy. I found alpha lipoic acid to be very helpful. In addition to magnesium

[kaypeeoh]

For long-time runners plantar fasciitis is a common injury that doesn't easily lend itself to healing. This causes pain on the bottom of the feet. The other common malady is achilles tendinopathy. This causes pain in the calcaneus, the heel bone. Also difficult to heal. I had achilles tendinopathy for over 40 years. Was finally healed with surgery .

[Grammy80 in reply to kaypeeoh]

Thank you...it does help to know that, though at 84, and having had six lower extrmity surgeries including right ankle fusion.....I think I will tough it out for a while. It is definitely my left heel. Now is I was 30-40---💞 But then.....

[shaken-not-stirred in reply to Grammy80]

Hi Grammy are you taking Vit B Complex - or anything with Vit B6? If so how much?

[Grammy80]

No, I'm not...just Vitamin D and Fiber Capsules, that's it. Magnesium has also been suggested....I take lots of medication which I've gathered over the year. Each has a definite purpose, but I think I need to discuss it with the neurologist on my follow-up visit. What would you suggest...? The B Complex or B6 and I believe someone mentioned B1. I'll put the suggestions on my list of ?? Thanks💞

[shaken-not-stirred in reply to Grammy80]

The reason I asked is because anything higher that 5 mg of B6 can cause burning painful feet. Okay you are taking Vit D - Vit D needs Vit K2 and magnesium to work properly - I have my pwp on Vit D3 1000iu + K2 90mcg sublingual and 500mg multi magnesium every day and he has been much better for taking them - he also has potassium 600mg prescribed by GP for cramping and I take 200mg myself ( I need to be careful as I have adrenal problems) Some doctors say magnesium/potassium ratio should be 1:1 but it could be too much for some folk - the dose I have works for me. Hope this info is helpful.

[Grammy80 in reply to shaken-not-stirred]

Thanks so much....I've started a list to review with my neurologist on my next visit...she can cross check with my other meds...really helpful. The war of the chemicals has started.💞

[park_bear in reply to shaken-not-stirred]

What you are talking about is neuropathy, which can be caused by pyridoxine, the potentially toxic version of B6, but not P5P, the non-toxic form of B6. Vitamin B6 toxicity can also be caused by vitamin B2 deficiency in the absence of any B6 supplementation. See: healthunlocked.com/cure-par....

My overview of vitamin B6 here: healthunlocked.com/cure-par... , with links to additional posts regarding the details, all properly referenced to the medical literature.

[Grammy80 in reply to park_bear]

Wow...so many Bs~! Much appreciated and I'll start reading...thanks.💞

[Grammy80 in reply to park_bear]

As I've continued reading the links, I feel a bit overwhelmed right now. I'm 84, and from age 15 to 34, I had four grand mal seizures and tons of petit mal before those were controlled. I lived in Massachusetts and was treated by Dr. Ceasre Lombroso. It was my good fortune. Since my forties, I was on a very low maintenance dose until GCA. The high dose of prednisone watered my seizure meds, and I was put on 2000 mg Keppra and maintained 1 mg clonazepam because I'd been on it since age 15, and it wasn't worth withdrawing it. Since I was dx with Parkinson's and put on CL, I developed seizure auras in the morning mostly...or just trying to think, and I'd space off. My neuro ran bloodwork on my Keppra level and increased it by 500 mg. a day. No 'blips' yesterday but a few today...that sinking feeling. I don't feel bad for myself...but between the GCA, right-eye sight, and PD....this seems like a tricky needle to thread. It is taking every fiber of my being to string this post together. Could it be the seizure blips are due to no B6?

I read and printed the Karger Article link re: seizures ......my head is going in circles...and I'm grateful....I've got to escape with an Audible book right now...if my head will let me.💞💞

[park_bear in reply to Grammy80]

Levodopa medication induced B6 deficiency usually strikes long time Parkinson's patients on high-dose levodopa medication. Since you are a new patient on a starting dose of levodopa medication this is not likely to be your problem as a result of taking levodopa medication. There are many possible causes of seizures and B6 deficiency is only one of them. To check this as a potential cause I suggest getting your B6 and B2 levels checked on your next doctor visit.

Kudos to you for taking the initiative to read up on this issue!

[Grammy80 in reply to park_bear]

All good to know, and I will surely pursue the vitamin B levels. It could still be exacerbated by the 60 mg of pred each day. I'm grateful for your links and then where they lead me. My head is still a bit fudgy....and my husband has dementia, and I'm not so sure he can handle this...so I want to be as armed with as much knowledge as possible to be able to max each day myself. You play the hand you are dealt, and facts help....even if I absorb them in bits and pieces.💞

[shaken-not-stirred in reply to park_bear]

Yes park_bear - peripheral neuropathy to be precise. I get it in both feet mostly at night - not from B6 but from nerve damage in my back. B Complex with P5P and the ratio of other B's that suit are hard for us to get so we stick to 2 makers who only have 5mg with what we need with all the others.

[park_bear in reply to shaken-not-stirred]

What makes you so sure that 5 mg is sufficient? How much levodopa medication do you take?

I take 70 mg of P5P daily + 100 mg of vitamin B2. I have abundance, been taking this for years, no problems.

[SanMateoPD]

For me I went from ~1 mile a day to more like 4-5. That means I need to adjust my level of foot protection to what hikers/athletes do.

I have found wearing two pairs of socks helps, like hikers do. After all I'm increasing the wear and tear/impact force by 4x over most of my life