Next NoSilverBullet webinar on 14th Octob... - Cure Parkinson's

Cure Parkinson's

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Next NoSilverBullet webinar on 14th October: “Mucuna Pruriens and the future of Parkinsons care in low income countries” by Dr Roberto Cilia

Michel0220 profile image
21 Replies

I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7.00pm London time on Monday, the 14th of October.

Dr. Roberto Cilia will be talking to us about “Mucuna Pruriens and the future of Parkinson's care in low income countries”.

Dr. Roberto Cilia is a leading specialist in the use of mucuna pruriens. His main focus is on using mucuna to treat Parkinson's patients in countries where levodopa is either not available or not affordable. This is a great opportunity to learn about this important legume!

Please use the Eventbrite link below to register for this event:

eventbrite.co.uk/e/mucuna-p...

Please visit our website if you want to know more about us:

nosilverbullet4pd.com/

Dr. Roberto Cilia is a renowned movement disorder specialist based in Milan, Italy. With extensive experience in neurology, he has dedicated his career to improving the lives of patients suffering from Parkinson's disease and other movement disorders.

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Michel0220
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21 Replies
Gioc profile image
Gioc

thank you very much!

The Doctor Roberto Cilia is a legend to me for all the good he has done in Africa and for patients with Parkinson's disease.

🙏

Gio

Michel0220 profile image
Michel0220 in reply toGioc

Thank you very much Gioc. Yes, he has done a lot for those parts of the world where levodopa is either not available or not affordable. His very practical knowledge of Mucuna will be of interest to all of us and I am looking forward to his presentation on the 14th of October.

Gioc profile image
Gioc in reply toMichel0220

Precisely Michel,

He is not one who has been in an ivory tower writing prescriptions.

I think he is one of the greatest experts on Mucuna among other things.

It will be a pleasure to hear him live.

PDFree profile image
PDFree

Thank you so much for letting us know about Dr Cilia and this talk! I’ve used a lot of mucuna for several years and always wished I had someone knowledgeable about it to guide me with its use instead of trying to figure it all out myself. . I’ve never heard of Dr Cilia and am so happy you shared this. I will be watching!

Many thanks Michel!

Victoria

JayPwP profile image
JayPwP in reply toPDFree

True... I hope some basic strategies are covered on how to transition to Mucuna, recommended brands, dosage, timings and Carbidopa (or no) considerations.

Basically while the science is fascinating to understand, practical strategies for using Mucuna would be better for the Members.

Michel0220 profile image
Michel0220 in reply toPDFree

Hi Victoria - you are most welcome!

Alphasyn profile image
Alphasyn

Great to see that MP is been taken serious by the medical profession, but please be careful that MP is NOT going to be framed as for poor countries only, because that is total nonsense!

JayPwP profile image
JayPwP

I want to transition to Mucuna but unable to do so due to lack of guidance and fear of adverse events

Michel0220 profile image
Michel0220 in reply toJayPwP

Thank you Jay. In order to manage expectations, I want to be clear that Dr Cilia has been looking at using mucuna where levodopa is either not available or not affordable (low and medium income countries). This involves helping people with Parkinson's to grow their own mucuna, or helping local farmers to do the same.

His primary focus is not to replace levodopa with mucuna in those places where it is both available and affordable.

You will however find that he has a lot of practical experience and I hope that his presentation will provide you with valuable information.

JayPwP profile image
JayPwP in reply toMichel0220

Thanks Michel

Propertytyphoon profile image
Propertytyphoon

Like many, I dabble with Mucuna but would appreciate better advice so am looking forward to this

Smittybear7 profile image
Smittybear7

will there be a replay?

Michel0220 profile image
Michel0220 in reply toSmittybear7

As always 😀

Gioc profile image
Gioc in reply toMichel0220

Not being able to follow him live in English, I will also watch the replay.

Thanks Michel.

Smittybear7 profile image
Smittybear7 in reply toMichel0220

Thank you!

Oneworld23 profile image
Oneworld23

Thankyou for the link I have registered for the event

Michel0220 profile image
Michel0220 in reply toOneworld23

Thank you Oneworld!

gomelgo profile image
gomelgo

I sadly got there a bit late, and didn't realize it would be such a short interview. I hate to say this, but I'm not convinced he really knows about mucuna, I will be sure to watch the parts I missed, and am grateful to you for doing this interview. I think it important to do a counter interview with someone else who might be able to give us some practical advice and considerations rather than advocating even harder for a drug that is known worldwide to cause many very harsh "side" effects. I know he based his opinion on much experience, but to come on your interview and basically tell people to stop taking mucuna is super insensitive. And the tired comments about waiting a few more years, and that we "just don't know" don't add up. If we just don't know, then at LEAST we don't know. Whereas with the drugs we know damn well about the "challenges". Who does he get his paychecks from, do we know? As you can tell, I am more than disheartened by this blatant dismissal of things we "don't know".

BuSurfer profile image
BuSurfer

The message and research is clear in my opinion (read for example levodopa.net/ )....Mucuna is better with less side effects(he keeps using P-value statistical significance excuse which i understand but even with noise you can't help notice most results favored Mucuna. This is also confirmed in other studies referenced in the book link above by Dr. Maldonado and as i have posted numerous times doctors will never encourage you to take it as there is no standardization of supplements so have liability and are covering their tails. Hence I used the same JAMA study he references in video and use a brand in that same study that was carefully tested. For 2,000 years humans have been using Mucuna to treat Parkinson's so don't tell me to wait for more data. Yes you need to find a good source and carefully dose but it's worth the effort.

Farooqji profile image
Farooqji in reply toBuSurfer

I have experimented wit different mucuna seeds and found that each had different effectiveness for the same quantity. The percentage of levedopa varies from 4 % to 11 % depending on the genre. This variation make its use a bit difficult

Farooqji profile image
Farooqji

There is no doubt that mucuna is more effective than the synthetic levedopa, reason being the other ingredients of the seeds which act synergistically with levedopa content

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