Fainting: I faint and fall unconscious for... - Cure Parkinson's

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Fainting

JayPwP profile image
31 Replies

I faint and fall unconscious for a few minutes randomly. I thought that it happens when I take Pramiprexole, as it happened twice earlier in that context. It usually happens after C/L.

I feel nauseous and faint. When I regain consciousness I vomit.

This is not due to any hypotension. I faint in sitting position.

Any ideas?

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JayPwP profile image
JayPwP
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31 Replies
JCRO profile image
JCRO

my.clevelandclinic.org/heal... might help. Lots to read on dysautonomia and PD, all over the web.

Gallowglass profile image
Gallowglass

Could it be vertigo? Or neck dystonia? Or other neck issue? Or vagal neuropathy. I know my dopamine levels are lowest at the moment no when I take dopaminne. Dystonias are worse when dopamine is low. Neck dystonia can be hard to spot.

MilkyWayHome profile image
MilkyWayHome in reply toGallowglass

Also, re: vertigo that you mention - I have this. the room spins and whether standing or sitting plus nauseous. It has to do with crystals misplaced in your ear. I control by taking decongestants when I feel least bit congested. The real cure originally for me , until I discovered preventative congestion idea on my own, was the Epley maneuver (& there are other maneuvers ). Pretty easy fix if this is the problem! be sure someone drives you to the PT and be sure the PT drops your head below the table -->( look on line) Google of course. best of luck!

Gallowglass profile image
Gallowglass in reply toMilkyWayHome

Thanks!

gomelgo profile image
gomelgo

I am so sorry you are dealing with this. 🥲 I know very little about this so take what I say with a grain of salt. Just wondering if this could be a poly pharmacy response.

chartist profile image
chartist

These are known and common side effects of Pramipexole as described here :

drugs.com/sfx/pramipexole-s...

Or is it placebo effect?

Art

JayPwP profile image
JayPwP in reply tochartist

Have not taken Pramiprexole for 6 months now, yet fell unconscious yesterday.

chartist profile image
chartist in reply toJayPwP

Sounds like one your doctor will have to figure out via testing.

Art

House2 profile image
House2 in reply toJayPwP

this happens to me, I have PD and an inner ear problem. Doc thinks pd is coupling with ear causing dysautonomia. Do your feet swell, have overactive bladder? I did a phone consult with Dr. Lasko, he's great. youtu.be/jBpS7y6wHfI?si=1bx...

JayPwP profile image
JayPwP in reply toHouse2

Hi, just realised I hadn't answered. No feet swelling, no bladder issues

Gymsack profile image
Gymsack

I know that you said "This is not due to any hypotension. I faint in sitting position."

but it is not that simple

What you have described is classic sudden low blood pressure as caused by Parkinsons and parkinsons medications including LD. It doe not take a large drop in blood pressure to start things rolling.

Tips to help reduce low blood pressure episodes include:

Drink water and increase the amount you drink, Try sport 's drinks that contain electrolights

Minimize or avoid drinking alcohol

Get up slowly and stay still if feeling dizzy or lightheaded

Avoid sitting or laying flat for long periods

Avoid things that can cause you to overheat, like hot baths, saunas, or being outside for too long on a hot day ( Heat stroke and sun stroke are more prevalent in PD and it does not take much to push you over the top)

Raise the head of your bed slightly

Try to eat smaller, more frequent meals

Consider wearing compression stockings that reach all the way up to your hip or over your belly to avoid cutting off circulation to your legs or at minimum compression tubes over your feet and ankles , with loose diabetes socks with padded sole over the tubes and spongy sole inserts in your shoes .

I have done all these things every day with good result but before when the situation was like yours , tests and measurement showed nothing but there was something wrong (classic PD statement ) I suggest that if you treat it like momentary low blood pressure and follow the tips that the fainting spells will go away.

If it walks like a duck and talks like a duck , its a duck

JayPwP profile image
JayPwP in reply toGymsack

Thank you 🙏

Gymsack profile image
Gymsack in reply toJayPwP

One more thing if you get a chance stand in clean moving water, great for the legs and hydration. works on horses and us Pwp also. You will notice that your legs want to float up so not too deep to start. You are welcome.

shaken-not-stirred profile image
shaken-not-stirred

YES! - This was happening to my PWP - it is called syncope and pramipexole is notorious for it. How much are you taking? PWP ended up in hospital after he collapsed and knocked himself out. Then tried to get out of chair because he was going to vomit and fell against a table and it took me 1/2 hour to get him lucid and steady enough to get him off the floor.

And he fell in the shower and broke 2 ribs and knocked himself out.

Late last year we got him off it over 4 months and he has not had any issues since. Be aware it is not easy to get off it and it must be done slowly.

Charaf1959 profile image
Charaf1959

C'est un effet secondaire connu hypotension orthostatique. Diminuez les doses jusqu'à l àrret définitif

JayPwP profile image
JayPwP in reply toCharaf1959

Thank you 🙏

MarionP profile image
MarionP

There are so many possible causes, some of them very serious, you need to get to an internist, internal medicine specialist.

JayPwP profile image
JayPwP in reply toMarionP

Those are very rare in India

eschneid profile image
eschneid

Is it when you sit up or are you already sitting....Just curious, do you have a very slow heart beat that could require a pacemaker. Most likely the pramipexole, but just wanted to throw it out there.

JayPwP profile image
JayPwP in reply toeschneid

Already sitting... Pulse is usually around 70

flyboypiper profile image
flyboypiper

Sorry to hear about your episode with pramipexole. As stated in the response below, Pramipexol can have effects as much as a year after the last dose. According to drugs.com. When I was first diagnosed with Parkinson's, the neurologist tried to put me on Pramapixel.. it made me extremely dizzy. and Sleepy.. I looked. it up and realized that many people have fallen asleep like you said without. warning, regardless of what they were doing, even while they were driving a car.. This caused one woman to have two serious accidents that cost her her driver's license. I personally think that it's irresponsible in the part of a neurologist to prescribe this drug without. making people who understand the side effects of it on the front end so they can be prepared for them. And of an agreement with the treatment program..

edwardhopf profile image
edwardhopf

I had short blackouts and had fuzzy buzzing in my head for about a year. Stopped driving and saw several specialist. Was tested for mini strokes and passed. Cardiologist put me on a monitor and it turned out my heart was stopping for several seconds. Pacemaker cured all the problems

1LittleWillow profile image
1LittleWillow

My mother had what we thought were fainting spells, but it turned out that she needed a pacemaker. Her heart would stop briefly, and it would look like she passed out.

MilkyWayHome profile image
MilkyWayHome

Hi, my husband has PD. He had trouble with falling and something he said about how he was feeling made me think of electrolytes. I gave him some potassium (Dr Berg's brand) that I happen to have on hand. Then I read that PD peeps have a deficiency in potassium. I make sure he takes some every other day and include avocados with dinner. He hasn't had a problem with falling since then - worth a try-

oh testing for potassium - google it - there's a much truer test than usual one the doctors prescribe. We didn't test him though, just use the powder potassium and avocados.

Hope this helps because it'd be an easy fix for a serious problem

JayPwP profile image
JayPwP

Thank you all for your inputs.

Heart stoppage and dysautonomia are two things that I will speak to the doctor about?

robinson621 profile image
robinson621

The dose of your medication could be too high

LGIN profile image
LGIN

Buenos Dias JayPwP, yo tomo Pramipexol de 0.5 Tres veces al dia (mañana, mediodia y noche) y Gracias a Dios nunca he tenido efectos secundarios, llevo 2 y medio años tomandolo, junto con Amantadina, tomo L/C 100/25 media tableta 8am, 12am, 4pm y 8 pm, Realizo 1 1/2 hr diario por la mañana ejercicios de fuerza, equilibrio y cardio, creo que eso me ha ayudado bastante en la ralentizacion de la EP, a lo mejor lo tuyo es como describe Edward Hopf, checa con un cardiologo para que puedas estar tranquilo con ese episodio del desmayo, que todo salga muy bien.

JayPwP profile image
JayPwP

Doctor advised fitting a pacemaker 😱

Ironically, I am scared of the pacemaker more than the alternative adverse events

Holter findings
bassofspades profile image
bassofspades

If your heart rate drops all the way down to 40 and you faint, then the pacemaker is the right thing. I would be more afraid of NOT getting the pacemaker and fainting again, hitting head on the concrete and all that goes along with it. The vomiting might be vagus nerve related, not sure.

But here's something that might make all the difference - If you are still doing Carnivore, make sure you are supplementing your electrolytes, this could all be from that. Or, did this all start because of any change in medications? Like Marion P said, there are lots of possible causes. Its quite a process figuring it out.

Consider the pacemaker. Its not a bad procedure to get one, I assisted on hundreds of pacer installations during my years as a Cardiac Cath Lab / Interventional Tech. Lots of times, we put them in with just a little sedation and a lot of Lidocaine. The recovery is not too bad, just keep your left arm down and keep the incision site clean. If they cant figure out if its medication related and make an effective adjustment, I'd get the pacemaker. Be safe and good luck, my good friend!

JayPwP profile image
JayPwP in reply tobassofspades

Thank you Bass.

JayPwP profile image
JayPwP

I have Bradycardia, with very low heart rate and AV block with pauses upto 2.5 seconds, during early morning in my sleep.This all came up during investigation of my fainting spells.

First cardiologist advised a pacemaker based on 3 days Holter monitoring. Second opinion cardiologist ordered a Tilt-Table test, 24 hours Ambulatory blood pressure monitor and upon my request 7 days Holter and 2D Echo.

Based on all the results, it was concluded that there was no problem with the heart that could cause a Syncope. The issues observed are all during sleep, which can be normal.

Further investigation showed me that post 25/100 C/L, just when the on state starts, BP goes down to 80's/60's and I feel sleepy, and then slowly comes up after some time.

It is my assumption that on some occasions it may be lowering further causing me to faint. Neurologist appointment is two weeks away.

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