low ADH levels in blood.anybody had this ... - Cure Parkinson's

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low ADH levels in blood.anybody had this with parkinsons

20fatcats profile image
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Hi. Has anybody with Parkinson's had an issue with getting up in the night to pee and then doc has tested blood and found low levels of AD H which is anti diruetic hormone. I don't think it has anything to do with Parkinson's but family member may have low levels of this ( awaiting blood test to see) and is worried it is indicator of early Parkinson's. Absolutely no other symptoms so I doubt it is but thought it would be good to ask you all, Thank you

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OKWY profile image
OKWY

I suspect urinary frequency was the only symptom my hwp had for about 6-7 years before onset of other symptoms. But that's just my gut feeling, he's never been tested for ADH hormone levels. We thought it had to do with his prostate, however it was never enlarged at all. He was diagnosed with small localised prostate cancer later on, had radiotherapy and is cancer free (2 years now), the urinary frequency has always been an issue and still is, thus my suspicion that it has to do with the autonomic nervous system and atypical PD. I'm curious whether more replies indicate other PWP have similar accounts.

20fatcats profile image
20fatcats in reply toOKWY

hi. Thank you for your reply. It might be worth him having the blood test because apparently there is a tablet that can be prescribed which normalises the hormone. Its a hormone that the body naturally produces at night so as to signal the kidneys to slow down. I don't think it changes day time frequency just the need to get up a lot at night. I would be very interested to hear of other PD's who started with urinary issues. My PD did ( maybe not sure if its connected) but an ultra sound revelled a very large tubulated bladder that didn't empty well. The specialist didn't say it could be because of the PD

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