hi my wife yanett was diagnosed with parkinson in 2002 and a nervous depression, and also has a hart time to sleep and has a strong jaw and left hand tremor, problems to swallow food and a daily nevous state. since the diagnose she has been taken aproximatly 75mg of lovadopa daily and diazepan 5mg escitalopram 5mg and for sleep mirtazapine 3,25 but since she started this treatment she havent feel better at all and still have all the mentiond simptoms. a month ago she took the desition to take a high doze of thiamine B1 treatment taking 100mg oral of B1 and 100mg of magnatium cloride daily but still we dont see improvements. please we woud like to know if some one have any experience and could counsel us because after taking all these medicaments she dont feel any better, thank you so much.
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Hi there. I follow Dr Constantini s B1 protocol and methods because he had used and tested the method in his Clinic for many years. There is a lot of information on B1 on this site so it is advisable to start by putting B1 in the search . A contributor by the name of Chartist has drawn together information and it is certainly good place to start.
my husband found mirtazapine made him very tired all the time and so he weaned off it very slowly over a few months . You might be better with the diazepam before bed and some melatonin for sleep.
There is no medical cure for PD. In my mind, the medical world does not want a cure for PD because, it does not kill us.
I was diagnosed with PD in 1992. I took all sorts of Medications until 1996, with no good results.
My late wife, Shirley, persuaded me to join her FAST WALKING group, which I did.
The FAST WALKINH had solved her medical problems, which medication had not.
I started to do the FAST WALKING in 1994 and by 1996 my PD symptoms had all disappeared.
It has since been proved by scientific studies done at the Mayo Clinic that FAST WALKING produced a substance called GDNF, which repairs damaged brain cells.
By 1996 my PD had all disappeared and right up until this past year it had remained inactive but, due to having had a couple of falls, due to my own carelessness, I am at the moment unable to walk properly, at the age of nearly 90.
I do walk as fast as I can, but it is not fast enough, and the PD is slowly coming back again.
I have had a good innings and I will keep trying. I now walk with a WALKER, which I hold in both hands and walk as fast as possible, but it is not as good as before, on my own.
Yours was the first website I found after diagnosis in 2018 when searching for ways to slow progression. I believe that walking smartly has helped ,and I continue to walk as fast as possible along with my husband. Even when I'm in an "off" period I find it helps to walk as best I can......it helps with pain and has kept me supple. Thank you for your help. Wishing you well.
In November 2018 I was officially dg with PD. It wasn't a surprise, recognising the signs from helping care for my brother in law who died 5 years after his dg, but I went into a tailspin and my symptoms increased rapidly. ( rigid arm,leg,back). I refused meds initially, desperately searching the Internet for alternatives,and found 2 websites of interest. 1st, Janice Walton-Hadlock, which I found fascinating, but but too difficult to practice., and John Pepper.By April 2019 my symptoms were so severe that I succumbed to Madopar which worked instantly for me, but because I metabolise it so quickly the wear off effect began within a year, and left me feeling distressed, waiting for my next small dose several times daily. I looked again at John's story, and though I walked daily anyway, I began in earnest, walking with Nordic poles too. I found that in addition to keeping my meds from increasing too much, it raised my spirits, and probably whatever dopamine I have left! I've tried, and am still trying different supplements, latest being B1 sublingual, but the walking has been my most consistent and so far effective therapy apart from riding for disabled,and I believe it has kept my symptoms, and anxiety from racing. I walk smartly every day, holidays included, and I'm not ashamed to excuse myself when visiting friends to take a swift hike around the block.....they often join me !! John has been my inspiration ❤️
The PD diagnosis was in 2022? It doesn't seem like a coincidence that these symptoms occur simultaneously... Certain B vitamins may be related to nervous depression and PD. Low levels of B12, folate, B2, and B6 have been associated with a higher risk of depression, but they have also been linked to PD symptoms! If this hasn't been done yet, I recommend that your wife gets her B levels tested as soon as possible, especially the essential B6 and B2, which are usually not included in a standard blood test. Simple supplementation with bioactive B vitamins may be sufficient in case of deficiency, but be cautious of overdosing. Keep testing every 3 months until a balance in your B levels is achieved.
You can try to get on to this group to get and ask for information about B1 therapy for PD. There are many success stories using B1 therapy.facebook.com/groups/parkins...
We have found that 500mg of a good multi Magnesium + 500mg of potassium per day + Multi B Complex with low B6 and 15mg ( approx) other Vit B's x 1 per day + 1000iu of Vit D3 with 180mcg K2 x 1 per day + Krill 1000mg per day + Vit C + 300 ml of a milk drink for calcium - helped enormously with stress and mood and sleeping.
At night after our evening meal we have the Vit C + Vit B + Magnesium + iced coffee.
In the morning we have Potassium + Krill + Vit D with K2 with some food.
My husband has PD - he was very depressed and gave up on life when he was diagnosed - I took advice from Joseph Mercola for both of us and the above is what I came up with - the difference in him in a very short time was wonderful and we both sleep like babies 7-8 hours. We have small to medium sized meals - he lost weight and full of energy. He also like your wife has issues swallowing - so with meals that don't have a lot of moisture I make sauces and gravies and pour some over the problem foods - we find salads etc with some mayo are fine and I don't mash potatoes etc - I just steam the veges and add some butter. I hope you may be able to find something in here that will help your wife - I am not fond of all those drugs that they want to give you as we have not had good results and the more natural remedies have helped more.
Being active and well rested and laughing a lot at PD and life makes a huge difference - I wish you both all the best from Australia.
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