most don’t know about nicotine, you should. Read my previous post if you’re wondering about it.
I’ll soon be off c/l. I have experimented with nicotine and it seems to work better than the meds. My sense of smell is returning. I’m smelling things that I wish I couldn’t smell, lol. I forgotten the smells of lots of different things. Really if you’ve never smoked before, nicotine is not addictive. And hypothetically if it is, aren’t you addicted to c/l. I’ve said before I stopped c/l cold turkey early in my diagnosis and went into neural malignant syndrome. You can die from that. You can’t die from stopping nicotine. Nicotine has been shown to be neuroprotective. I’d rather be addicted to something protective of my brain. It is a crime that this has been suppressed in my opinion. The gum works better for myself. Kinda as it as needed. Do you know that our wonderful president wants to stop nicotine products by 2030?? Wonder why?
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38yroldmale
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Nicotine is known as the drug that is responsible for the addicted behaviour of tobacco users, but it has poor reinforcing effects when administered alone
I’m not on the site like I used to be, as my husband, Alan passed last year. I do though have a98 year old friend with PD. The infrared coronet and CoroNase are arriving this week.
Anyway, I saw the word Nicotine and remembered Professor Andrew Lees who was quoted on this site quite awhile ago. In 2011 he was named the world’s most highly cited Parkinson’s Disease Researcher. I also saw an article quoting him on what he’d do if he had PD. I quote “I’d increase my coffee intake and even chew some nicotine gum twice a week.”
Gwendoline
PS The Wellred CoroNase gave my husband back his sense of taste and smell.
Thanks Jay. He died very quickly from a catastrophic bleed. It was a blessing really, as he’d had delirium a few times, which led to dementia. I miss him terribly.
yes, Catherine from Wellred says to start once a day in the morning after breakfast and if all is well , add in the evening sessions straight after the evening meal.
I have a very old friend with PD (98years old). I’ve convinced him to start using the coronet and CoroNase. It’s arriving this week. His symptoms are mild, although his handwriting is very bad. Catherine suggested “get a notepad and write out a line of poetry with the date on it. Do it daily and note which day he starts the Coronet once daily, and which day he moves to twice daily. He can keep a record and see for himself. “
Catherine also said that we are hoping for two outcomes
1. symptom Improvement
2. slowing the disease progression
Gwendoline
Ps I’ve seen videos on this site featuring Catherine and Wellred, also on YouTube.
Be careful on nicotine as it can cause osteoporosis. My partner just went through 6 months of very painful compression fractures in his back due to osteoporosis. 4 of them, T5-8, one at a time almost a month apart each. Spend 12 weeks in a brace and Now on Reclast to rebuild bone to avoid more fractures. Parkinson’s progressed of course due to inactivity, been a nightmare for him. All causes of osteoporosis ruled out except for smoking for 50 years.
Need to weigh if the nicotine is worth it for you.
Nicotine can contribute to osteoporosis:
It can disrupt the balance between bone resorption and formation, which can lead to osteoporosis. Slows the production of osteoblasts, which are bone-producing cells. Can reduce the body's ability to absorb calcium from food, which is necessary for bone mineralization. And can reduce blood flow to bones and other tissues.
"Really if you’ve never smoked before, nicotine is not addictive...." Oh, horse manure, dude. My dad and mon smoked since they were teens. Then when I was 17 and leaving home they managed to uit. But when dad was sick with prostate cancer he went back to smoking. Mom had quit and never went back.
Not sure how that applies? They both smoked. I’ve never said tobacco is not addictive. it’s the delivery system and the chemicals they add to smokes that make them addictive.
All the arguments against nicotine turn out to be fraudulent in some way when examined - somebody is making money by convincing you it is harmful. As an example, they repeat that nicotine harms the CV system, in some way. However, the world authority on long-term pure nicotine administration to never-smokers, Dr Paul Newhouse, states clearly that the only chronic effect he can locate unrelated to treating patients with assorted medical conditions is that nicotine lowers the blood pressure slightly.
You might want to read that last sentence again. It’s made by the person with the largest database on pure nicotine clinical trial effects in the world, when administered to never-smokers. Nobody else has access to this size of data resource.
Research has extensively shown that smoking is beneficial for a later onset of Parkinson's disease. However, a recent study on the effects of smoking in diagnosed PD patients found a direct association between smoking and various symptoms. PD patients who smoked experienced more difficulties with drooling, swallowing, freezing, unexplained pains, memory problems, and feelings of sadness. These findings suggest that smoking may aggravate both motor and non-motor symptoms in PD.
It must be due to my limited English, but this post is indeed about smoking and nicotine. Towards the end, nicotine gum is mentioned, but definitely not your nicotine patches... No problem at all, go ahead, don't keep your thoughts to yourself. 😉
Thanks, and I can see how one could easily interpret 38yroldmale 's post to be about smoking. I don't think he is advocating that. But I will let him speak for himself. I did not interpret his post as being about smoking. It was focused on nicotine. Not the same thing.
It’s not about smoking, I’m sorry if I’m being confusing. It’s about nicotine. The 2nd most abundant source of nicotine is eggplants. 3rd is tomatoes. God put it in plants for a reason. Nicotine in tobacco is addictive. Nicotine in never smokers is not. People don’t have eggplant breaks, they do have smoke breaks.
It was a big no for my HWP bc of degenerative disk disease. Study disputes effectiveness but if it works for you check what biomarkers to monitor to make sure it does impact other health etc.
The first product requires 1 capsule at breakfast, lunch and dinner for a total of 3 capsules total per day or 300 mg/day total. The second product requires application as needed for pain until the capsules start to take effect. Once the pain is managed, they were able to discontinue the second product.
In addition, these friends told me that melatonin lotion was additive to the benefit. I explained how other friends made melatonin lotion here :
If you decide to try the combo for DDD, they said they started to notice benefit within the first week and very noticeable in the second week with discontinuation of Stopain around 5 weeks.
The double blind studies I've seen using patches all found no benefit and even worsening symptoms in some. Not saying there isn't something there, but I think the patch route looks pretty useless. Would love to see some studies using nicotine gum. One huge issue with discussion boards like this use keeping in mind correlation does not equal causation. That's what placebo controlled double blind studies are for.
Hi, Unfortunately we don't really have time to wait for a placebo controlled double blind study for gum. I just wish we had tried the gum 10 years ago instead of big pharma drugs with side effects that almost destroyed our family.
I'm not saying you have to wait. I'm just pointing out that patches have been proven to not work and in fact people got worse. So THAT route of nicotine probably doesn't work. I don' think the gum would hurt. If the gum is doing something for you, great!
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Figured it was worth a try. I'm an ex smoker, so I doubt it will make me want to smoke again.
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