Ropinirole: I slowly worked my way up to... - Cure Parkinson's

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Ropinirole

Marion62 profile image
4 Replies

I slowly worked my way up to 4 x 2mg slow release tablets each morning in the hope it would increase my mobility - put on my socks - . pick things up off the floor - but no help.

I have been on this dose since January - and all it seems to have done is stop my feet freezing on the spot - and that was achieved at ai lower dose.

Your experiencie of ropinirole would be good.

Thanks

Marion

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Marion62
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4 Replies
Gallowglass profile image
Gallowglass

I was prescribed ropinerole but never took it because I feared the side effect of compulsive behaviors ( bad ones like gambling, sex, etc).

Windermere1 profile image
Windermere1

my PD nurse wanted to prescribe for me but I refused because of all the bad reports I have heard

healthabc profile image
healthabc

I take ropinerole for 5 years now. It was the 1st med prescribed to me. At the time, it helped a little ; I would take it at bedtime and in the morning, I was not quite as stiff, particularly in my fingers. Worked up to 8mg. Soon thereafter, I began taking sinemet. Every dr I talk to these days asks WHY I am on ropinerole. I have been advised to discontinue it, and I would like to, but that's not so easy; withdrawal symptoms can be severe and lasts weeks (PAWS- look it up). so now I am kind of stuck in a tough spot. My advise- steer clear of ropinerole. I wish I had.

MsPrint profile image
MsPrint

i got a suggestion to reply to your question because my husband had some experience with Ropinerol. I don’t think our experience may be pertinent to your question. My husband had been taking it with no apparent ill effects for some time. Then he got shingles (he experienced the first symptoms one day after getting his first Shingrix shot). Soon after, he began experiencing delusions. Big weird ones. He was convinced we were living in an exact duplicate of our home but 300 miles away in San Francisco. He would get up at 2 am and start packing multiple suitcases so we could “move back home”. It was exhausting, i was getting no sleep and there was no convincing him. He even tried to cancel his doctor appointment because he was sure it was “so far away” we wouldn’t arrive there in time for the appointment. His doctor said in her experience, some of her older patients began to react badly to Ropinerol once they were over 70 ( he’s 80) so she took him off it. I would say it it took up to 2 months for him to completely drop the weird delusion (it is rare and has a name — “reduplicative paramnesia”.) That was almost 3 years ago and it hasn’t returned, but i often wonder was it the Ropinerol that caused it or the shingles. In either case it doesn’t sound like it applies to you.

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