Cue1 Device: Anyone tried the Cue1? See... - Cure Parkinson's

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Cue1 Device

DrBruce72 profile image
16 Replies

Anyone tried the Cue1? See charconeurotech.com/what-is...

Bruce Stevens

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DrBruce72 profile image
DrBruce72
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16 Replies
Boscoejean profile image
Boscoejean

Is it available in Australia? It is not available in the US so no chance of trying it - I have been on their waiting list for years but since they don't seem to be getting it authorized in the US not much chance

sutensera profile image
sutensera in reply to Boscoejean

You should ask one of your contacts in UK to buy it and ship it to you. It may still take a few months to deliver. That's how one of my contacts got it in India

DrBruce72 profile image
DrBruce72 in reply to sutensera

Thanks for the tip

Jalia profile image
Jalia

Yes. My husband has had his Cue1 for about 5 months. It has proved to be a great help for his movement He no longer needs a walking frame

CRMACK1948 profile image
CRMACK1948

My husband had a Cue device for 6 months,but it did nothing to help his Parkinson’s symptoms.The company were really helpful,and gave us a full refund.I have a theory as to why it didn’t help my PWP.He has no sense of rhythm,cannnot clap or walk to a beat,and has never been able to dance.Cue seems to work through your body reacting to the regular vibrations it sends to your body,but if you have no ability to process that ,then it won’t be successful.It seems to help 75% of those that have tried it. The company itself were amazing,committed to help and full of suggestions,which sadly didn’t work for us.

Jalia profile image
Jalia in reply to CRMACK1948

That's interesting. I agree that the company are excellent to deal with. There appear to have been a few teething problems with the device but these were dealt with very promptly and efficiently.

Zella23 profile image
Zella23

My husbands had his for more than a year now helps sustain his stride when walking. Wears it from about 11 in the morning until bed time. He even has his arm swing back too. I’ve written a few posts on it if you look on my posts!

Rafafan profile image
Rafafan in reply to Zella23

I've put my husband omn the waiting list about a month ago. How long did it take you to get one? thanks

Zella23 profile image
Zella23 in reply to Rafafan

it was about a year I think, you can check where you are on the waiting list on their website.

Rafafan profile image
Rafafan in reply to Zella23

Thanks, I'll check, I did try to check after I'd jpoined waiting list but it didnt work then for some reason.

DrBruce72 profile image
DrBruce72

Thanks for all the comments, my wife is going to the UK and will try to get one in August, best wishes

CRMACK1948 profile image
CRMACK1948

I suggest you get in touch with them and explain the situation,they don’t have a shop,or a physical place you can go to get one,but they might make an exception and send one to an address your wife can provide.If you haven’t done so already sign up for their news letter,it’s full of what improvements they are making in the design,and various seminars you can take part in.

Farooqji profile image
Farooqji

Did nothing for me

bobweiser profile image
bobweiser in reply to Farooqji

Apple has come out with a program called Parky and within it a program called Foggy for the Apple Watch. I have an idea it works about the same as the CU1 from the UK.

bobweiser profile image
bobweiser

I would like to hear more success stores here. I have been on a waiting list for over a year but I'm in the USA. Would gladly make a trip to UK for my wife. I understand they are talking with the FDA now.

Hirric profile image
Hirric

I have one which is no longer required. Please DM your interest.

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