Prof Bas Bloem presents "The importance of nutrition in managing Parkinson's disease"

[Propertytyphoon]

If you missed this excellent presentation then it is now available on our YouTube channel

youtube.com/watch?v=QqCa5r9...(Not working as expected?)

Please share this recording with your own PD community so that as many PwP can benefit

Thank you

[Lamadre]

For me as. a newbie I found this very informative, a quick guide to the most important things to do and to watch out for as well as some to avoid. Diet info, gut health/constipation and keep exercising.

[gomelgo]

one concern I have is with his repeated statement about his not finding studies to support one item or another. To me that doesn't mean the studies are not there, just that he has not found them. With an overwhelming amount of studies being done, I don't think it's possible for any one person to find them all.

[Esperanto in reply to gomelgo]

You are right. No one, perhaps approximate AI in the near future, can contain all scientific research and experiences on a larger scale. With all the examples mentioned by Bas Bloem, there will certainly always be other and new insights, but it is impossible to weigh them, especially not in a one-hour lecture. As someone with personal experience of the consequences of B6 deficiency in PD and PN, you expect to hear more about this, but that topic alone could fill a webinar and there would still be plenty of unanswered questions.

However, the frameworks that he provides for approaching these issues with a certain logic, as Laurie Mischley also does, were very inspiring. As he himself pointed out, in the end, you have your own experiences b=1 and can make your own choices. I will take it to heart to share that with my neurologist (which in general only happens in 40% of cases) from now on.

[gomelgo]

That was definitely the ultimate point he was making here. And I agree that sharing with your neurologist is important. The biggest challenge I see with that is that the neurologists also have personal preferences and biases. So they may not be very receptive to some of the choices we make. I am lucky that my neuro is actually the one who prescribes thc/cbd, and was the one who recommended I get in touch with Dr Mischley's office. And as a result of that I found that I have very low DHEA levels. Which also confirms for me that my unusually early menopause may very well be connected with the neurological issues I am experiencing now. Took my first DHEA this morning .. we wait. Essentially, I think many if not most of us in the PD community are walking experiments.

[kaypeeoh]

AARRRGGGGHHHH! The more I read, the less I know. He starts by mentioning Manganese. And shows a young woman who took manganese to treat acne and now she's permanently walking with a PD shuffle. Manganese is used to allow steel to melt at a lower temperature. I was a welder for 30 years and never used any sort of mask. Then he talks about probiotics. And says Lactobacillus in the gut produces Tyrosine DeCarboxylase, an enzyme that converts levodopa into dopamine. Levodopa crosses the BBB, dopamine does not. Then he mentions mucuna, which is dopamine that can't cross the BBB without a carrier protein.

AARRRGGGGHHHH!