Zhittya treatment claims to reduce PD symptom's by 50%

[tandolino]

I am looking for something to help slow down my PD, came across this

parkinsonsnewstoday.com/new...

It cost $50,000 plus travel and lodging costs.

I am npt impressed by their b4 and after video on their website. Has anyone had this treatment?

[scotta]

I always get suspicious when the cost for experimental treatment is a round number like "50,000". Or "25,000" as it is for some stem cell treatments. But I would love to be wrong about this - I would find a way to pay it if I knew it would work.

[Smittybear7]

Interesting. Thanks for sharing. Please continue to send information on this. How can anyone afford it?

[tandolino in reply to Smittybear7]

If I thought it would work I would have to find a way to pay for it, beg borrow or steal-- raid retirement funds... But it is obvious this is just another scheme to try to profit out of other's misery.

[WinnieThePoo]

It doesn't work. And it's not approved by any drug superviser. It doesn't appear to be dangerous is about the kindest thing I can find to say

[MBAnderson]

I agree with Mr. Poo. IMO the company is a scam.

[PixelPaul]

Save your money...

[MarionP]

$50,000? Surely for that they could do better than graft a couple of pictures off the internet for you? Are you sure if you go to the website it doesn't download some child-p**n malware onto your computer, or something that will hack your personal information and put a couple more mortgages on your house?

[7springshollow in reply to MarionP]

Yes!

[Lyricist]

this has been discussed previously in this forum. The general consensus was negative and that the claims were questionable to say he least! Avoid!

[Patrickk]

Bydureon (a.k.a., Exenatide), a repurposed Type 2 Diabetes drug, is now in third-stage trials in UK for stopping Parkinson’s in its tracks — results expected 2024. Testing — mice, open label, double blind — has been going on since 2010 and it has been positive every time.

scienceofparkinsons.com/201...

According to a very sensitive test, Homeostasis Model Assessment for Insulin Resistance (HOMA-IR), 2/3 of Parkinson’s patients are supposed to be insulin resistant. IR may be treated with Bydureon (Exanatide). Just an angle that might get us one step closer to getting Bydureon.

cureparkinsons.org.uk/news/...

South Korean researchers have learned how to dial our cells back to stem cell stage -- and are now administering monkey stem cells to parts of their brains that are short on dopamine producing cells -- with the hope they will fill in and take over the job.

Started this before with stem cells from other monkeys and had some success I think until local immune systems attacked foreign cells.

So there is even realistic hope for a cure.

today.com/video/new-vibrati...

[PDTom in reply to Patrickk]

and also on my homepage parkinsonclub.de/videos-fro...

[YoungPD-48]

Its a lot of money, let me share my experiment and hope it might help you, I follow this 3 golden rules:

1. Before going to bed I eat 4 tablespoon of Fennel seeds and chew it nicely for 20 to 30 minutes, it helps with constipation and next morning you will have good bowl moment, once your bowl is empty, you feel energetic

2. Do 12 hours fasting- it means I eat my dinner at 8pm so I do not eat anything until 8am next morning- this will allow your body to relax and repair

3. I go out for fast walking everyday

since I am doing this, my PD symptoms are in control and hope it will help you as well, try its free and no side effects and you will see results within 2 months

[Pixelpixie]

I’ve watched their informational videos and found it to be mostly fundraiser and investment efforts with no solid science

[7springshollow]

My husband and I checked out zhittya when I was first diagnosed 5 years ago. They were selling stock and going to "go public" "soon" and everyone would make a fortune. We were going to invest but after an hour long phone meeting with the montano something just didn't seem right. I've watched them for years. Always "right around the corner" from having all of their research done. They've put out some underwhelming videos asking you to see the improvement in patients. If they are now charging 50k for their out of country unproven treatment it fits right in with what I've seen. They only sold stock in the storage and delivery part. Not the production. If they've decided to offer this at a location I wonder what happens to all of the people who made the minimum 10k investment based on having their treatment approved soon and available all over the world. They also stressed that they wanted to keep it affordable because they just wanted to help people . Research dan montano and seeWhat you find.

[TurtlewPD]

The treatment is totally legit! I went through Zhittya Genesis Medicine’s FGF-1 treatment in the BVI in November 2022. After 15 years of decline and dealing with PD, I now feel near normal again. After much research on Zhittya (zgm.care) and FGF-1, I concluded it was in my best interest, especially when the medical community did not have anything new to offer. Some of my rationale is if I did nothing then nothing changes, if I try something new then I have everything to gain. Two comments on the cost, first, I am totally worth it, the second, I would rather be $50K poorer and have my health back than continue to decline with PD.

[Cagey84 in reply to TurtlewPD]

Hi Turtle, I’ve looked at your profile, every single one of your replies on this forum is to do with Zhittya. Why?

[TurtlewPD in reply to Cagey84]

I am relatively new to the forum and I seldom respond in forums like this. However when it comes to Zhittya and FGF-FGF-1 my goal is to make people with PD aware that this treatment is available. One other note the drug is available to participants for life it is not a one time treatment. Participants can ask for additional treatments every 6 months.

[Cagey84 in reply to TurtlewPD]

So what you’re saying is that people can pay $50k every 6 months not just as a one off?! Hardly makes it more attractive.

If you’re confident it works so well, why don’t you and your colleagues go through the correct drug development process and prove it?

[TurtlewPD in reply to Cagey84]

What I was trying to say is the cost is one time, participants can ask for additional treatments every six months at no additional cost. What do you mean by the correct drug development process?

[Cagey84 in reply to TurtlewPD]

Hi Turtle - this is the process I was referring to - fda.gov/patients/learn-abou... . It ensures (usually) that drugs are safe, efficacious and of the correct quality. As far as I can see, Zhittya don't have this evidence.

[stlewy in reply to Cagey84]

I've spoken with reps of Zhittya. The company has done steps 1 and 2, and for USA, step 3 takes time (several years) for clinical studies to initiate (with 50% placebo). For those who do not want to wait, or do not want the chance of a placebo, they can participate in a medical research study and have the medicine for life at a cost (currently 50k), and includes updates and advancements in the medicine. My question is looking for people who have taken it, and how much improvements have been seen.

[JayPwP in reply to stlewy]

I think Zhittya had established the trials in Mexico to circumvent the FDA issue.

Also Zhittya has been dosing patients in the British Virgin Islands and have reportedly surpassed 150 Parkinson’s disease sufferers who have been dosed with FGF-1.

If this is true, Zhittya should be able to start trials anywhere in the world and show efficacy.

I was super excited and interested in the trials, but when Zhittya asked me to pay for my own trial, I lost confidence in them.

[Graciedog123 in reply to Cagey84]

The FDA wants animal studies first. I’m not waiting for that. It takes years!!

[Graciedog123]

I also went to BVI for treatment with FGF-1. It has only been 8 weeks. On day 4 of treatment I got my sense of smell back. Breakfast never smelled so good. Everything turtle said above is correct. Prior to going I researched Zhyttia for 15 months. I don’t believe it is a scam. Yes, 50K is a lot, but, after talking/Facetiming with many others. Who had already gone, and hearing their testimony, we decided to go. Dan Montano told me to wait and share this with others when I have good results. I want to share on this forum now because I see so much uninformed comments and I could not want for others to miss out on the benefits. So, right now other than my sense of smell, and more pep in my step, I am waiting patiently for more positive results. I believe I will see improvement around 6-9 months of being on FGF-1. When I do I will be shouting from the mountaintop the results. As a health care provider myself and living in this culture for many years, I have learned to be my own advocate. I the very beginning of my research when I asked my neurologist and nurse practitioner for their thoughts regarding this study I got a response in less than 24 hours. Needless to say, they said don’t do it. In America, our medical professionals have been taught how to study new drugs. Americas way is long, long, and long. There are others ways to help people. Some of us cannot WAIT.

There is Nothing else for. PD. What have I got to lose? It is safe. My research has confirmed that.

I will post again in 6-9 months.

Blessings

[Zardoz]

Before & after videos can so easily be misleading. I go through a cycle of phases throughout the typical day. Meds on and meds off. Film me when I am struggling and call it "before." Film me during my best 30 seconds of the day & call it "after."

[Graciedog123]

It has now been almost 7 months that I have been following the protocol from Zhyttia's FGF-1. Earlier this week I had my second video follow-up appointment. It was more thorough than my 6 mo. follow-up with my neurologist. I am still very hopeful for improvement. I have had a couple of days where I noticed I was not tremoring. I typically tremor 24/7 except while sleeping. I hope that I will have increasing number of days like those. PD is a very slow progressing disease, at least for me. It has been 9 years since my diagnosis. I don't think the reversal of PD will be quick. I am thankful they offered the BVI option for $50K. I do not want to wait on the FDA for approval, or be involved in a 50/50 chance of being on the drug in a study. That's just me. I am grateful for my husbands support and encouragement to spend the money. He see's me struggling and believes also, that it is worth a try. There is nothing else out their and I am not getting anything new from my neurology group in the last 9 years. They just want me to take C/L and move on. Medicine in the USA is not the only way !!! At my recent Neurology appt., the nurse practitioner said my fine motor skills showed improvement. Best to all my PD counterparts out there. I pray for all of us everyday. Happy to entertain any questions.?