How Many Pd Patients to overcome Benefit... - Cure Parkinson's

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How Many Pd Patients to overcome Benefited by Fast Walking?

JohnPepper profile image
50 Replies

I am getting too old to try to motivate a controlled study about the advantages of doing fast walking to overcome some of the symptoms of Pd. What I do know for certain is that all but three of the many hundreds, or even thousands, of people I have shown how to consciously control their walking, have failed to understand how to do it. All the others have been immediately ale to walk properly.

Perhaps we can start off by asking all those, who have gained benefit from the fast walking, to write in and tell us all about what has happened to them.

The amazing result has been that those people, who have taken up regular fast walking have all noticed an improvement in many of their symptoms, as I have.

It took me eight years before I plucked up courage to come off my medication and have been medication-free since 2002.

WHAT HAVE YOU ALL GOT TO LOSE BY DOING FAST WALKING?

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JohnPepper profile image
JohnPepper
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50 Replies
parkie13 profile image
parkie13

Wonderful photo of the two of you. You both look very happy Mary

jeffreyn profile image
jeffreyn

JohnPepper asks 2 questions.

1. How Many Pd Patients to overcome Benefited by Fast Walking?

I don't understand the question. I suspect it might be a trick question. I'm going to skip it.

2. WHAT HAVE YOU ALL GOT TO LOSE BY DOING FAST WALKING?

This one is more straightforward. In my case I would lose my ability to exercise. I get discomfort in my right knee when I jog or fast-walk. I don't have this problem when I do high-cadence cycling.

jeeves19 profile image
jeeves19

We've nothing to lose Jon but I'm saddened by how despite lots of walking and lots of cycling I'm definitely getting worse and having to increase my meds to be 'normal'. You'll never alter your outlook but it just doesn't work for everybody, as with the coconut oil. It's far too complicated a disease to believe that 'if I can do it, why can't everyone'? Each person's cause of PD is probably very different as is their DNA and this probably affects progression and response.

JohnPepper profile image
JohnPepper

Please allow me to respond to each valid point you make:

1. More than 99% of all the people I have shown how to walk properly have been able to do so. That means that they no longer shuffle and can walk quite fast straight away. So in my way of thinking, if the patient can walk properly, regardless of 'what type of Pd he/she has' it matters not!

2. Being able to walk properly and safely is essential to being able to walk fast.

3. Cycling also gets positive results but it has to be at maximum effort, and that is difficult.

4. We have to exercise at maximum effort in order to make the brain produce the GDNF, which I firmly believe it does.

5. We have to maintain the high level of effort for a maximum of one hour, three times a week. You cannot start at that level, you have to build up slowly over a period of at least six months.

6. you have to walk or cycle three times a week, for maximum results.

6. If you did not walk or cycle at maximum levels of exertion you will not get better. Be honest with yourself, did you walk flat out? Did you maintain that speed for a period of one hour three times a week? Did you walk properly and safely? If not, then how can you expect to get the results?

jeffreyn profile image
jeffreyn in reply toJohnPepper

JohnPepper said: "Cycling also gets positive results but it has to be at maximum effort"

No it doesn't have to be at maximum effort!

The protocol for the clinical trial specified a cadence of between 80 and 90 RPM, and a heart-rate of between 60% and 85% of HRmax, where HRmax is simply calculated as 220 minus your age. Forty minutes per session, three sessions per week.

journals.lww.com/acsm-essr/...

JohnPepper profile image
JohnPepper in reply tojeffreyn

What was that specification intended to achieve? Was it claimed to be able to improve Pd symtoms?

jeffreyn profile image
jeffreyn in reply toJohnPepper

The clinical trial was an experiment to see whether the improvements observed during a cross-country tandem bike ride could be reproduced in the lab.

The outcome of the experiment was that the specified protocol was found to achieve "improved motor function and central nervous system function (increase in cortical and subcortical activation)".

The link in my previous comment is to the full research paper.

Rscott profile image
Rscott in reply tojeffreyn

85% of maximum HR for any extended period is Maximum effort.

jeffreyn profile image
jeffreyn in reply toRscott

Hi Rscott,

Thanks for your input.

Yes, the upper limit of the protocol's specification for heart rate (85% of HRmax), for an extended period, could be considered maximum effort.

However, the lower limit of the protocol's specification for heart rate (60% of HRmax), for forty minutes, would not (IMHO).

Jeff

JohnPepper profile image
JohnPepper in reply tojeffreyn

I agree with you! But how do we know when we are walking at 85% HR? Being a simple person, I know that if I am unable to talk, while I am walking, I am walking too fast. If I can say a couple of words, that is about the right speed. If I can talk normally, I am wasting my time and energy.

jeffreyn profile image
jeffreyn in reply toJohnPepper

You could wear a heart-rate monitor, but your fast-walking rule-of-thumb sounds fine to me.

JohnPepper profile image
JohnPepper in reply tojeffreyn

I assume the heart-rate monitor would fit on the wrist? I would find it hard to look at my wrist area, while walking because I have to concentrate so hard on the walking that taking my concentration off the walking would probably cause me to stumble or fall. I have poor eyesight, which would make it even more difficult, as I do not wear my glasses when walking.

jeffreyn profile image
jeffreyn in reply toJohnPepper

I used one initially, but now, like you, I can tell when I'm doing it right.

JohnPepper profile image
JohnPepper in reply tojeffreyn

I assume you are talking about fast walking?

jeffreyn profile image
jeffreyn in reply toJohnPepper

Fast walking (in your case), and high-cadence cycling (in my case).

Mike1942 profile image
Mike1942 in reply toJohnPepper

Morning John. New to this forum so only just catching up with you and your experiences. 12moths + ago I was a shambling wreck of a man but I taught myself how to run. I too couldn't look down at my heart monitor or I would stumble and fall. So I learnt to hold it high infront of my face.Also at the end of a 5km run , I tended to carry on and needed "catchers" to stop me. Subsequently I now run , look down at my fitness watch , check for holes in the track, and can even look over my shoulder to see who is running up behind me. I think it was pure b***dy mindedness on my part that has helped me get this far. But I am a firm believer in exercise. The harder you can take the better your results will be. Mike

JohnPepper profile image
JohnPepper in reply toMike1942

Well done Mike!

JohnPepper profile image
JohnPepper

Thanks! I would love to see a study comparing several exercise protocols to see which is the best. However, whatever form of exercise that brings about an improvement in our condition is 100 times better than taking medication, which does absolutely nothing to improve our condition.

Doctors should be putting all their patients onto an exercise program before they even consider prescribing medication.

enricomoraca48 profile image
enricomoraca48 in reply toJohnPepper

Caro Giovanni, sei una persona intelligente e sensibile, e questa ultima osservazione lo conferma completamente. Condivido pienamente il tuo ragionamento.

lempa_nik profile image
lempa_nik in reply toenricomoraca48

No doubt Italian is a beautiful language. But for those who do not understand it completely, here is the result from Google Translate:

"Dear Giovanni (John), you are an intelligent and sensitive person, and this last observation fully confirms it. I fully share your reasoning."

JohnPepper profile image
JohnPepper in reply tolempa_nik

Thanks!

JohnPepper profile image
JohnPepper in reply toenricomoraca48

Can anybody translate this for me please?

Hikoi profile image
Hikoi in reply toJohnPepper

Exercise is medicine, people who are into learning about their condition and taking responsibility for their own health know this. Fast walking has never been proven the best or the only one. We must all find the one or more that suits us as an individual. Sadly i have never met anyone who has reversed pd, only those who live well despite pd - exercise is part of that. This is an encouraging clip.

m.youtube.com/watch?feature...

Islandhappy profile image
Islandhappy

John I have taken your words to heart. Not up to an hour yet but a good half hour with added stretches,light weights, and a bike sprint every day. Just diagnosed. Taking a ton of supplements, eliminated sugar, using mucuna instead od ld/cd. Seems to be helping me function. Thanks for your advice.

SELFMeder profile image
SELFMeder in reply toIslandhappy

John

I'm not up to a full hr of fast walking, but I have found 30 or so mins coupled with vigourous rowing for 15 mins to be far superior to my old routine of 60 min on the tread mill. And I am gradually increasing my fast-walking duration in hopes of achieving the "flight v. fight" level of arousal of my brain that you associate with PD reversal.

I have taken your advice to not have a full workout every day. Gives my muscles time to refresh. I have also added core strength exercises on my full workout days. Together with rowing, I am now in full command of my upper body movements, including being able to dribble a basketball with both hands. Sorry to report, however, that my shooting is as bad as when I tried out for the basketball jr varsity in high school!

I have this full workout 4 times per week. Then, on the light days I try to moderate to fast walk a mile or more. When weather permits, I attach a long leash to my strong Golden Retriever, Roxie, and let her pull me to and from over open terrain.

The rest in between the full workout days has enabled me to avoid mid-night leg spasms.

Your book, Reversing Parkinson's Disease, has been invaluable.

Trusam2913 profile image
Trusam2913 in reply toSELFMeder

Hi I agree and have also found John's book excellent. I have been fast walking for some months now and do find it beneficial however I have terrible pains across my shoulders and down my neck that it takes 20 mins before I can continue. Anyone else experienced this?

JohnPepper profile image
JohnPepper in reply toTrusam2913

This sounds like tension to me. I am not trained for this but I have to see that me shoulders are being held down, while I am walking, and not held up in a tensed position. Check your shoulders while you are walking.

Islandhappy profile image
Islandhappy in reply toTrusam2913

Try stretching shoulders. Roundhouse swings. Backward and forward. Try touching shoulder blades back and also grab trapezius muscle as you swing arms in windmill motion. This relaxes the trapezius

JohnPepper profile image
JohnPepper in reply toIslandhappy

Thanks! I assume you mean before and/or after the walking. It would be impossible to do it while walking flat-out.

Islandhappy profile image
Islandhappy in reply toJohnPepper

Of course. I prefer after. However I do some arm exercises while walking to up my heart rate. Walking in the park and nature path also helps my psyche

JohnPepper profile image
JohnPepper in reply toIslandhappy

If your goal is to do fast walking to reverse your Pd symptoms then you need to do it for up to one hour, without interruptions, at nearly maximum effort. I have tried to do the arms swinging as you indicate but cannot do it at maximum walking speed.

Islandhappy profile image
Islandhappy in reply toJohnPepper

so the fast walking that you do doesnt include the swinging arms??

JohnPepper profile image
JohnPepper in reply toIslandhappy

I carry a one kilogram weight in each hand and swing my arms across my body at 45 degrees about 40 mm (16 inches) of movement. Other people swing their arms backwards and forwards with about 3 feet of hand travel. That is slower than across the body.

JohnPepper profile image
JohnPepper in reply toSELFMeder

You sound like you lead a very busy life. You must allow your muscles to recover from high levels of exercise. I am very impressed with what you are doing.

With the shooting for the hoop, all I can suggest is to find some way of doing it differently, which would mean that you would then be using your conscious brain to do it.

JohnPepper profile image
JohnPepper in reply toIslandhappy

Keep up the good work. Don't expect the Pd to disappear in a year. You will soon start to feel a lot fitter and stronger. Well done!

Motherfather profile image
Motherfather

i do it myself i have done for the last 20 years but its still very painful.i even have abs and im nearly 71,

Bazillion profile image
Bazillion

I prefer cycling to walking, (did 148 km this week.)

However, when The PD symptoms start rearing their head late in the day ,instead of popping a pill I try and practice a fast walk and the shuffling,leg dragging awkward gait dissapears when I stride it out! . I am always conscious of my walking and think about every step and John is right it does work.

JohnPepper profile image
JohnPepper in reply toBazillion

Atta boy! Don't give in.

Coling profile image
Coling

I find fast walking beneficial to overall health which impacts on my parkinsons symptoms...I will watch the you tube video ...I find videos are the best way for me to absorb information...thanks John

JohnPepper profile image
JohnPepper in reply toColing

How many of my videos have you seen?

Coling profile image
Coling in reply toJohnPepper

I saw the one with you walking on promenade and have read the book just think it would be great if you did a fast walk in slow motion 😀Good work thanks John

JohnPepper profile image
JohnPepper in reply toColing

It's a good idea. I will speak to the film studio

hanifab23 profile image
hanifab23

Hi John you both look great

JohnPepper profile image
JohnPepper in reply tohanifab23

Thanks! Its not the looks that count its the inner strength that gets us there.

hanifab23 profile image
hanifab23 in reply toJohnPepper

do you remember me I met you in Emeryville CA

Rscott profile image
Rscott

Pole walking as physical therapy helps with the gait and arm swing.

youtube.com/watch?v=3nEVqt4...

JohnPepper profile image
JohnPepper

Thanks! I will circulate this to all my contacts

hanifab23 profile image
hanifab23

Hi John you both look great

Parkie- profile image
Parkie-

Hi John. I keep reading your posts and website stating all pwp can walk fast and long. Before symptoms in 2016, I used to walk fast for about 1:30 a day near home and or threadmill, plus lots of hiking trails on w-ends and vacation. Since then, I drag my left leg so much, I cant walk more than a few seconds. I also completely lost my left arm swing. I have advanced rigidity on all of my body on the left side that I feel pulling when i walk (back, etc). I cant help but wonder how one can pursue walking in this condition. I was a big walker and i still would love to walk, so i look forward to your advise. I am not taking any meds, just testing supplements right now. Tks

JohnPepper profile image
JohnPepper in reply toParkie-

It appears to be difficult for some patients to understand what I mean by walking 'Consciously'. When 'normal' people walk, they don't have to think about what their legs and arms are doing. Bu people with Pd do now have to think about what their arms and legs are doing.

If you hold onto the back of a chair and stand on one leg while moving the other backwards and forwards you will find no problem doing that. but if you let go of the chair and try to walk, you appear to be unable to do the same thing.

When I demonstrate conscious walking I hold the left arm of the patient, so that he/she cannot fall. I then tell them to stand on the left leg and see how far they can lift the right leg up in front of them with the knee held straight. They have no problems doing that with either leg. I then tell them to consciously start to walk with me holding their left arm. They have no problem.

Try doing this with somebody. Then, when you realize what you are doing you will be able to do it on your own.

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