does anyone else have lipodystrophy associated with their Parkinson’s? I’ve had Parkinson’s for more than 12 years and it has mostly been well controlled by steadily increasing levels of medication. Recently, however, I’ve been losing weight and body fat consistent with generalised Lipodystrophy. I know that this brings additional risks of diabetes and heart related issues, and that it is irreversible, but wonder whether there is any positive action recommended.
lipodystrophy and Parkinson’s?: does anyone... - Cure Parkinson's
lipodystrophy and Parkinson’s?
not sure how helpful this would be but this is what I found
How do you treat lipodystrophy naturally?
A healthy diet and regular exercise
There's no specific diet for treatment of lipodystrophy. However, a healthy diet plays an important role in overall health and in maintaining a suitable body weight. Aim for a diet rich in omega-3 fatty acids, fruits, vegetables, and fiber.
This sounds like what is happening to me. I have lost 20 lbs or more and have been eating 4 xday with 500 calorie meals. Everyone thinks I look strong because my bmi is so low and muscles and veins all show. Digestive issues continue. Plan to try red light therapy with platinum bio 300 and hoping not to lose more weight.
Thanks for your reply. The symptoms seem fairly distinct. From what I’ve read it’s best to have a carefully controlled low-calorie diet because once the fat cells are destroyed they cannot be replaced. the fat you digest thus becomes problematic for the liver and pancreas. So on a high calorie diet you are at heightened risk of diabetes and pancreatitis.
Thanks for your reply. The symptoms seem fairly distinct. From what I’ve read it’s best to have a carefully controlled low-calorie diet because once the fat cells are destroyed they cannot be replaced. the fat you digest thus becomes problematic for the liver and pancreas. So on a high calorie diet you are at heightened risk of diabetes and pancreatitis.
my husband lost 20 kg very quickly when we changed to a healthier diet but has stayed the same weight ever since. I do wonder whether we have an unnatural view of what a healthy body weight looks like these days, I tell him he looks like a Tour de France cyclist and he needs to get some Lycra and we have a good laugh about that.
I think it is important to eat enough protein and do resistance exercises to make sure muscle doesn’t waste away. Also to try and make sure everything you eat is packed full of nutrition and not empty calories.
Here is an energyblueprint podcast talking about the nutritarian diet.