10 years of my side to side tap test results

[johntPM]

Over the last 10 years, about once a week, I've measured my Parkinson's. I've done this using the side to side tap test on both my left and right sides. I've reported the results to this forum before. This post is an update.

I started doing these tests 8 years post diagnosis.

The conditions for doing the test were semi-controlled: on getting up in the morning; at least 12 hours post medication. The app hasn't changed over the 10 years. But, other factors were not controlled for: food; clothing etc..

For the first 8 years or so the trend was slightly upwards (improvement). I put this down to a training effect. Starting approximately 17 years post diagnosis I found the scores started decreasing (worsening).

The previous report can be found at:

healthunlocked.com/cure-par...

The app to run the test can be found at:

parkinsonsmeasurement.org/t...

John

[Bolt_Upright]

So... could you please interpret these results? It looks to my untrained eye like you have been stable this whole time?

[johntPM in reply to Bolt_Upright]

There are obvious questions about statistical significance. So, any comment is speculative. But in the absence of firm data and the imperative of keeping active, one must make the best of the data you have.

I say there is a slight improvement beause for the first 8 years the regression line is climbing. However, the increse is so slow that I wouldn't disagree with "stable". This is especially the case because of the likely training effect.

Subjectively, I feel that the measure gives a fair statement as regards my motor symptoms. But, overall my condition has declined, with new symptoms being added, e.g. drooling.

[Bolt_Upright in reply to johntPM]

Thank you. I am sorry to hear about the decline. I pray you find a path to stabilization and recovery.

[SAGoodman]

Thanks for sharing, didn't know about the side to side test!

[PDTom]

I have just done the test....

For me: left hand 22.45, right hand 33.09