Help Congress END our disease! Participat... - Cure Parkinson's

Cure Parkinson's

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Help Congress END our disease! Participate in a 1-on-1 meeting with this Congresswoman

PDWarrior1900 profile image
12 Replies

I have great news for you. Our team has secured a 30-minute virtual meeting with staff from the office of your U.S. Representative, Rep. Maxine Waters, to encourage her to support the National Plan to End Parkinson’s Act.

We plan to meet with congressional staff on Wednesday, July 12th at 12 pm PT.

Would you be willing to join the conversation to share a 5-minute story of your personal experience or connection with Parkinson's disease?

As a constituent, your voice and story can make all the difference. If you are able to join, our team will set up a call with you in advance to prepare and discuss details.

Thank you in advance for your consideration. We look forward to hearing back from you soon.

Best,

Dustin

Dustin Watson

Director of Government Relations

THE MICHAEL J. FOX FOUNDATION FOR PARKINSON’S RESEARCH

Get involved at MICHAELJFOX.ORG

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PDWarrior1900 profile image
PDWarrior1900
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12 Replies
JohnPepper profile image
JohnPepper

Is that not a waste of time? By now, we can see that it is not in the medical world's interests to find cures for illnesses that don't kill us? Think what they would lose if a cure were found! Think of all the people in the medical world who would lose their jobs! Of course, it would relieve the pressure on the staff who are battling to cope with the volumes od work.

Can you think of any CURES that have been found for illnesses that do not kill us? The common cold is one example. Surely by now we could have found that one by now?

Wake up!

LindaP50 profile image
LindaP50 in reply to JohnPepper

John,

Here is what HealthUnlocked - Cure Parkinson's is all about:

"This Cure Parkinson's HealthUnlocked community aims to seek the opinions of those with Parkinson's to help shape research and best clinical practice. Cure Parkinson's has one bold aim: to cure Parkinson's disease. We fund innovative projects and inspirational scientists with the aim of building momentum towards a cure. We improve communication and promote collaboration between researchers. We were founded by patients and involve patients in our work. We are working with the European Parkinson's Disease Association (EPDA) within HealthUnlocked to support members with topical information."

Susan80 profile image
Susan80 in reply to LindaP50

I have faith in cure Parkinson’s. But no faith in our government!!

LindaP50 profile image
LindaP50 in reply to Susan80

Understood. There is hope.

JohnPepper profile image
JohnPepper in reply to LindaP50

As everybody is alredy aware, FAST WALKING produces GDNF in the brain and thaty reverses PD symptoms. I have had PD for 30 years and at the age of 88 I am still going strong.

LindaP50 profile image
LindaP50 in reply to JohnPepper

Yes, fast walking helps. Glad you are still going strong and can walk fast.

JohnPepper profile image
JohnPepper in reply to LindaP50

YOU MUST WALK AS FAST WAS YOU POSSIBLY CAN, OTHEREWIASE IT DOES NOT WORK. NEVER WALK EVERY DAY BUT EVERY SECOIND DAY. NEVER WALK FOR LONGER THN ONE HOUR. BUILD UP SLOWLY TO THAT ONE HOUR. THEN KEEP RTRYING TO WALK FASTWR AND FASTER!

ssrs profile image
ssrs

Maxine Waters ….

DonnaMc1968 profile image
DonnaMc1968

interested in this approach to hopefully acquire government funding for research. Please send more information.

JohnPepper profile image
JohnPepper

Tell me more!

gomelgo profile image
gomelgo

I'd be thrilled to tell Maxine what I understand about PD so far (dxed 1 year ago) and my ideas about the way our political systems are set up to continue to fund failure to find cures. And how sad it is that people are told repeatedly to have hope where there is no incentive to find an actual CURE, only to medicate and treat ... not only PD, but pretty much every chronic condition. Also how our systems are set up to continually CREATE disease by spraying pesticides, and using technology that has been shown to cause harm. If that kind of statement is welcome, please do include me. Our health "care" system is itself in need of CURE. And yes, I believe we should all be talking about that.

ssrs profile image
ssrs in reply to gomelgo

Absolutely agree with everything you just said!!

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