What or Who is Synapticure?: synapticure... - Cure Parkinson's

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What or Who is Synapticure?

PNIAuthor60 profile image
5 Replies

synapticure.com/m/mjff-launch

I recently became a member of Synapticure's Expert Advisory Board. Synapticure is a virtual clinic with Movement Disorders Specialists able to see people living with Parkinson's in all 50 states. As a member of the advisory board, I am helping them to better understand Parkinson's patient perspectives so they can provide the best care possible for our community.

I am excited that Synapticure named The Michael J Fox Foundation as their newest advisor, an encouraging seal of approval from one of the spaces leading organizations.

If you're interested in learning more about Synapticure, they are hosting two webinars in the upcoming weeks: June 12 at 2 p.m. will be Women & PD with Dr. Jill Farmer and June 27 at 12 noon will be Disparities in PD with Dr. Chantale Branson, I'm hoping to attend both, You can register using those links and if you have any questions about Synapticure, please let me know.

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PNIAuthor60 profile image
PNIAuthor60
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Godiv profile image
Godiv

I’m so glad you wrote. I recently joined the practice and I keep meaning to post about it. It’s very cool and I’m excited.

👍👍👍👍

PNIAuthor60 profile image
PNIAuthor60 in reply toGodiv

Care to share your experience having joined? May I ask where you are located? I too am excited!

Godiv profile image
Godiv in reply toPNIAuthor60

I’m so sorry it took me so long to write back. So far I just started and it’s been fine . The first thing I did was contact them to get authorization regarding insurance. Luckily my insurance does take them. I’m sure there’s more information on their site for Medicare for example.

They’ve assigned me a care coordinator. She’s very nice. I have an appointment with a neurologist. They try to work with your current doctor because they are all virtual. They’re in Chicago ; I’m in Virginia. Take a team approach to Parkinson’s or ALS. And if you’re interested they’ll also try to find trials for you or give you information about trials. I haven’t really looked into that part yet. That’s as far as I’ve gotten so far but it is nice. Everybody seems very kind. So please let me know if there’s anything else I can tell you.

I am excited. It’s just a chance for something different and a team approach. That’s some thing I’m lacking right now.

Juliegrace profile image
Juliegrace

I don’t see any links for the webinars.

PNIAuthor60 profile image
PNIAuthor60 in reply toJuliegrace

Sorry about that - try this - synapticure.com/ Give them a call and they will be happy to advise you on upcoming webinars - they also have a blog that comes out regularly that you might enjoy, I certainly do - synapticure.com/blog

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